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dress. Please send an email
to [email protected] or call
800.737. LIFE.
If you are not a member of
Team Kentucky and would like
to join, the process is painless!
Anyone who has received a
lifesaving solid organ trans-
plant--heart, liver, kidney, lung,
and pancreas can join. Bone
marrow recipients are also
eligible to participate. Those
ages 18 months-100 years
can be apart of our team!
Team Kentucky members
raise their own funds to travel
and compete in the U.S. Trans-
plant Games which are held
every two years.
Sincerely,
NKFK Staff
Dear Readers,
Welcome to the National Kid-
ney Foundation of Kentucky’s
inaugural issue of Celebrate
Life! This Newsletter is meant
to do just that, Celebrate the
Lives of all those involved with
Transplantation and the con-
tinuation of Life. We hope
that you will join us in connect-
ing people to the issues that
revolve around the process’ of
Organ Donation.
We at the NKFK desire to Cele-
brate the Gift of Life with Do-
nors, Donor Families, Trans-plant Recipients and those
who Support them. Please
feel free to make mention
some things that you would
like to see featured in Cele-
brate Life. All suggestions will
be considered for publication.
We’d also like to recognize
transplant anniversary dates
as well as organ donation an-
niversary dates so please let
us know when those are! You
all mean so much to our or-
ganization because of your
willingness to volunteer, share
your stories, and create a sup-
port system for others like you.
For this we thank you and
hope that you will continue to
help us to get the word out
about Chronic Kidney Disease
and the crucial need for organ
donation.
We request all Team Kentucky
members to update their email
address’ with us. For those
without an email account, we
must verify your mailing ad-
The U.S Transplant Games
were held July 11-16 in Pitts-
burgh, PA . Over 6000 ath-
letes participated and com-
peted for gold, silver and
bronze medals in twelve
sports. Congratulations Team
Kentucky for bringing home 20
medals!
The purpose of the U.S.
Transplant Games is to pro-
mote organ and tissue dona-
tion and organ donor aware-
ness, as well as to recognize
donor families. Currently,
there are over
100,000(Information obtained
from the United Network for
Organ Sharing ) people on the
waiting list for an organ trans-
plant in the United States.
Team Kentucky did an excel-
lent job competing against
athletes from across the
Cont’d on pg 2
F i r s t I s s u e o f C e l e b r a t e L i f e
P H O N E
L I S T
The National Kidney Foundation of Kentucky800.737.LIFE
Kentucky Organ Do- nor Affiliate800.525.3456
Kentucky CircuitCourt Clerks Trust For Life
866.945.5433
National Living Do- nor Assistance Center(NLDAC)703.414.1600
The Transplant Cen- ter at Jewish Hospital
502.587.4011
University of Ken- tucky TransplantCenter866.285.4337
I N S I D E T H I S
I S S U E :
Welcome Readers 1
Team Kentucky 1
Volunteer Spotlight 3
What is Chronic Kidney Dis-
ease?3
Heart Healthy Recipe4
T e a m K e n t u c k y T a k e s H o m e 2 0
M e d a l s !
N A T I O N A L K I D N E Y F O U N D A T I O N
O F K E N T U C K Y
Celebrate Life Team Kentucky
Fall 2008 Volume 1, Issue 1
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Cont’d from pg 1
nation. The basketball team
succeeded with only four
players when other teams
had an average of six players
and we were down to only
three players in the champi-
onship game after an ankle
injury Robin Hinton sustained
during a previous game. Well
done gentlemen! The medal-
ists and their competing
sports are listed below:
Team Basketball
Junie Silvils Gold
Robin Hinton Gold
Leslie Howard Gold
Mark McGaha Gold
Team Bowling
Dot Duckworth Gold
Linda Basham Gold
Richard McKnight Bronze
Mark McGaha Bronze
Team Golf
Ron Pinchback Bronze
Bill D’Antoni Bronze
Singles Bowling
Dot Duckworth Bronze
Richard McKnight Silver
Ben Meibers Bronze
Singles Golf
Lance Alexander Silver
Ron Pinchback Silver
Single Swimming Breaststroke
Shirley Middleton Gold
Single Track & Field
25 Yard Dash-Riley Speck Bronze
100 Meter-Katie Raybould
Bronze
1500 Meter-Katie Raybould
Silver
2008 Sportsmanship Award
Jessica Owen Gold
Congratulations to all of
our Team Kentucky mem-
bers, you have made us
proud! The next U.S.
Transplant Games will
take place July 30th-
August 4th 2010 in Madi-
son, WI. Become a Team
Kentucky Member! For more
information contact: Lisa
Allgood, Team Manger
800.737.5433 [email protected].
Place Your
Ad
Here
Contact:
Team Kentucky pictured at the
2008 U.S. Transplant Games,
Pittsburg, PA.
T e a m K e n t u c k y
P a g e 2 C e l e b r a t e L i f e
“Hope is the
thing with feathers
that perches in the soul and sings the
tune without the
words and never
stops at all.”
-Emily Dickinson
Second Chance at Life Chapters
Ashland/Huntington
859.278.3492
Hopkinsville
270.839.2211
Second Chance at Life Chapters
Lexington
859.278.3492
Louisville
800.525.3456
Second Chance at Life Chapters
Prestonsburg/Hazard
859.278.3492
Tri-State
800.525.3456
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I n M e m o r i a m
Carroll H. Williams,60, of Louisvillepassed away on FridayOctober 10, 2008 at
Jewish Hospital. Hewas a member of TrustFor Life, KentuckyOrgan Donor Affili-ates, Second Chance atLife, Team Kentucky,and an army veteran of the United Sates of America military. Heis survived by hiswife, the former Deb-bie Snellen; daughters,Lexie and Angie Wil-liams and KarenKemper; sons, Jamesand Scott Williams,and Mike, Don, Scottand Brian Shepherd;sister, Pauline Hellard;brother, David
The National Kidney Foundation is offering a series of FREE monthlyinteractive telephone discussions called Coffee House Conversa-
tions™. These calls are being held to educate and empower you tobecome your own best advocate by giving you valuable informationon different topics related to chronic kidney disease, donation ortransplantation.Join us for Coffee House Conversations™ telephone discussions
on:
“Getting the Care You Need”
January 14, 2009
&
“Knowing Your Rights & Responsibilities”
February 11, 2009
(Toll free) Number for Calls: 888-603-9220 Password: KIDNEY
Hear featured panelists give presentations, and have the opportu-
nity to ask them questions by registering with the NKF. Space is limited! Be sure to register by calling 1-888-JOIN-NKF
(888-564-6653) or by filling out the attached registration form and
e-mailing it to [email protected] or fax it to Elizabeth Dun-phy at 212-889-2038.
Williams; twentygrandchildren and hisdonor family, Mi-chelle, Burt, Dawn
Miller and the YatesFamily. Carroll meantso much to the Na-tional Kidney Founda-tion and we will misshim so much, our sin-cerest condolences tohis family and friends.
Chronic Kidney Disease is
a condition that damages
your kidneys. It de-
creases your kidneys’ abil-
ity to balance your body’s
fluids and important min-
erals in your blood, re-
move waste products
from your blood, remove
drugs and toxins from
your body, and release
hormones into your blood.
The two main cause of
chronic kidney disease
are diabetes and high
blood pressure. Diabetes
occurs when your blood
sugar is too high, causing
damage to many organs
in your body, including
the kidneys and heart as
well as
blood vessels, eyes and
nerves.
High blood pressure, or
hypertension, occurs
when the pressure of blood against the walls
of your blood vessels
increases. If uncon-
trolled, or poorly con-
trolled, high blood pres-
sure can be a lead cause
of chronic kidney dis-
ease, heart attacks and
strokes. Chronic Kidney
Disease can also cause
high blood pressure.
(National Kidney Founda-tion , Kidney Learning
System)For more informationcontact the NKFK800.737.LIFE or [email protected].
C h r o n i c K i d n e y
D i s e a s e
More than 26 million Americans havesome form of kidney or urologic
disease. Millions more are at risk. TheNational Kidney Foundation, a major
voluntary health organization seeks toprevent kidney and urinary tract
diseases, improve the health and well-being of individuals and families
affected by these diseases, and increasethe availability of all organs fortransplantation. Through its 51
affiliates & divisions nationwide, thefoundation conducts programs inresearch, professional education,
patient and community services, publiceducation and organ donation. The
work of the National KidneyFoundation is funded by public
donations.
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Greetings to each of youand I hope you all hadan experience of a life-
time at the U.S. Trans-plant Games in Pitts-burgh this year.
The U.S. TransplantGames will be held July30-August 4, 2010 inMadison, Wisconsin.We will begin planningfor Team Kentucky totravel to the Games
soon. As in the past, aTeam Kentucky Plan-ning Committee com-prised of sub commit-tees will prepare for allaspects of “getting to theGames”.
The Team KentuckyPlanning Committeewill be comprised of
members from the pro-fessional transplant/ organ and tissue dona-tion community, recipi-ents, donor families, liv-ing donors and a mem-ber of the National Kid-ney Foundation of Ken-tucky Board of Direc-tors.These members will be
appointed by the TeamManager, Lisa Allgood.All members will bevery capable representa-tives for Team Kentuckyand will keep the best
interests of Team Ken-tucky in mind in all deci-sion making. The Plan-
ning Committee will meetquarterly in 2009 andmonthly in 2010. Themeetings are held inFrankfort, KY to accom-modate committee mem-bers who live in the east-ern and western part of theKentucky.
Members of the Planning
Committee will be askedto participate on at leastone subcommittee. Theseinclude: Fund Raising,Athlete/Donor Family Re-cruitment, Uniform andPublicity. This is not aninclusive list and othersubcommittees may beadded as the Team Man-ager/Planning Committeedeems necessary.
All team members will beprovided a list of theCommittee members andare encouraged to shareyour thoughts and ideaswith them. Communica-tion with Team Kentuckymembers will be by email,regular mail (for thosewho request it) and theCelebrate Life newsletter.
Team Kentucky raises alltheir own money to “getto the Games” and all ath-letes are invited and
expected to participatein fundraising activities.In the current economic
climate, raising fundswill pose a challengebut we are resilient andcreative and we willsucceed.
The National KidneyFoundation of Kentuckyis looking forward tothe 2010 Games and isdedicated to the man-
agement of Team Ken-tucky. Any questionsregarding Team Ken-tucky should be directedto the Team Manager,Lisa Allgood at 502-585-4433 or [email protected]
Best to each of you aswe get “On the Road to
Madison”!!
Lisa
O N T H E R O A D T O M A D I S O N ! !
Many thanks to our
Team Kentucky Spon-
sors! You helped to
make our trip to this
year’s games in Pitts-
burgh, PA a great suc-
cess.
KENTUCKY CIRCUIT
COURT CLERKS
TRUST FOR LIFE
UK HEALTH CARE
TRANSPLANT CENTER
MPC PROMOTIONS
KENTUCKY ORGAN DO-
NOR AFFILIATES
JEWISH HOSPITAL
THE TRANSPLANT CEN-
TER
KENBOWL
THE SKIN GROUP, PLLC
ROBERT H ZAX M.D.
WARREN ELECTRIC CO.
LOUIE WARREN
RECIPIENT & DONOR
FAMILY
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V o l u n t e e r
S p o t l i g h t
P a g e 5 V o l u m e 1 , I s s u e 1
Helpful Websites
National Donor Family Council
http://www.kidney.org/
transplantation/donorFamilies/
index.cfm
The NKF transAction Council
www.transplantrecipients.org
U.S Senate
http://www.senate.gov/
Did you know that The LivingDonor Assistance Program willpay up to $6000 in financial as-sistance to those who qualify.
For a list of guidelines and appli-cation materials go to:
http://
www.livingdonorassistance.org/ -or-
National Living Donor Assis-
tance Center (NLDAC) 2461 S. Clark Street, Suite 640
Arlington, VA 22202Phone: 703.414.1600
Pictured: Silvester “Junie” Sivils, Lisa Allgood(Executive Director NKFK, Manager Team Kentucky)
We would like to thank Junie Sivils for being anoutstanding volunteer. He was the emcee at
The National Kidney Foundation of Kentucky
8th annual Kidney Walk. The Walk took place
on September 20, 2008 and was a huge suc-
cess.
Junie is a kidney recipient and received his
kidney from a related living donor in 1993.
From the moment I met him I was able to rec-
ognize his kindred and easy going spirit. He is
always very encouraging to others and has the
ability to transfer his contagious smile to any
audience. He has been a participant in the
U.S. Transplant Games since 1996 and even
took home a gold medal this year in three on
three Basketball.
The reason Junie participates in the Transplant
Games is because “[I]t gives him a better un-
derstanding about life, that is, we are all the
same”. Thank you for your wonderful attitude
about life and remaining positive throughout
life’s daily struggles.
can’t help but fall in love with herand her exuberant spirit. Sheblesses so many people in her lifeand could teach us all a few of life’s lessons. Jessica participatedin the 2008 U.S. Transplantgames where she competed in:softball toss, bowling and swim-ming. She received the teammanager’s gold medal for sports-manship. For Jessica the gameswere more than a competition tobeat out one’s opponent but an
opportunity to meet new friendsand others who share in under-standing the common strugglesheld by transplant recipients.
Meet Jessica Tandy Owen, TeamKentucky member and vivaciousfourteen year old. Jessica wasborn with biliary atresia, a rarecondition in newborn infants inwhich the bile duct between theliver and small intestines isblocked or absent. Jessica spentmuch of her infancy making tripsto and from the hospital until shereceived a liver transplant onJanuary 25, 2004. Jessica’smother became a living donor
when Jessica was in need of akidney transplant which she re-ceived on September 14, 2006.When you first meet Jessica you
C e l e b r a t e L i f e S t o r y
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Good nutrition is the key to good health
for everyone. It is especially importantfor people with chronic kidney disease.Even with the help of artificial kidneytreatments (dialysis), you cannot get ridof all the wastes and fluids that build upin your body from what you eat anddrink. (National Kidney Foundation,Kidney Learning System)Try this quick and easy recipe to haveready during a weekend football game orfor dinner during the week.
Ingredients:
Dough1/2 package (1 1/4 teaspoon) dry yeast
1 cup warm water
1 tablespoon oil
1 tablespoon sugar
2 cups flour
Sauce
3 oz no-salt tomato paste
1/2 cup water
250 East Liberty Street, Suite 710
Louisville, Kentucky 40202
Phone: 800-737-LIFE/502-585-5433
Fax: 502-585-1445
E-mail: [email protected]
Website: www.nkfk.org
The National Kidney Foundation of Kentucky
Seeks to Become the State-Wide Leader in
the Prevention of Kidney Disease and a Val-ued Source of Information and Support for
Kidney Patients and Their Families.
Our Goals Include:
• Supporting Research and Research
Training
• Continuing Education of Health Care Pro-
fessionals
• Expanding Patient Services and Commu-
nity Resources
• Educating the Public
• Shaping Health Policy
• Fund Raising
N K F K
S a l t - F r e e P i z z a
Share Your Spare!
WE’RE ON THE WEB!
WWW.NKFK.ORG
1/4 teaspoon garlic powder
1/2 teaspoon oregano1 tablespoon sugar
1 tablespoon oil
1/4 cup chopped onion
1/4 cup chopped green pepper
1/2 lb cooked gourd beef, well drained (my
mother would always rinse under cold water
to rid the excess oil)
6 oz mozzarella cheese, shredded
Directions:
Dissolve yeast in warm water. Stir in 1
tablespoon oil, 1 tablespoon sugar and
enough flour to make a soft dough. Stir
20 strokes. Place in a greased bowl,
turn to moisten all surfaces, cover and
let set in warm area. Combine tomato
paste, 1/2 cup water, garlic powder,
oregano, 1 tablespoon sugar and 1 ta-
blespoon oil in a small saucepan.
Simmer 5 minutes. Grease a 17x 14
- inch baking sheet. Press dough over
sheet to edges. Cover with sauce.
Top with onion, green pepper, beef
and cheese. Bake at 400°F for 20 to
30 minutes until dough and cheese
are golden brown. Cut into 12 pieces.
Per Serving:Serves 12/1 piece per serving
Calories 201
Carbohydrates 19
Protein 11
Fat 9Sodium 75
Potassium 176
Phosphorus 115
Renal and Renal Diabetic Exchanges:
1 Meat
1 Starch
1 Low Potassium Vegetable
1 Fat