2007 FALL Newsletter

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    A Publicati on of the Nat ional Ki dney Foundation of Kentucky

    Fall 2007Phosphorus and Your CKD Diet

    A Message from the Executive Director,Lisa Allgood

    Many people will ask : How can I help the Na-tional Kidney Foundation of Kentucky? One of the best ways to help kidney patients and trans-

    plant recipients and continue kidney disease pre-vention education is through a financial contribu-tion. Your donation means we can continue ourprograms and services that have made us the state-wide experts in kidney health. Here are someways you can make a contribution:Donate online. Make a secure donation now bycredit card to the National Kidney Foundation of Kentucky at www.nkfk.org . Click on the DonateNow button.Donate by mail. Send a check to support our pro-grams or servicesDonate by phone. Make a credit card contribu-

    tion or pledge by phone.Memorial or In Honor donations. Remember/ honor a loved one or friend, honor them on theirbirthday or transplant anniversary, etc.Gift of assets. Such as real estate, works of art, lifeinsurance policies, tangible property and securities/ stocksEstate Planning /Will. Consider including theNKFK in your WillFinancial contributions last fiscal year allowedthe NKFK to:

    Provide free kidney health screenings to 1,089participants through our Kidney Early EvaluationProgram (KEEP)

    Teach 317 school age children about kidney dis-ease prevention and organ donation

    Provide 5,200 educational brochures to profes-sionals and the public about kidney disease pre-vention and organ donation

    Provide $40,000 in direct financial assistance tokidney patients and kidney transplant recipients

    Thanks for your consideration and support.

    P hosphorus is a mineral found in your bones. Along withcalcium, phosphorus is needed for building healthy strongbones, as well as keeping other parts of your body healthy.

    Normal working kidneys can remove extra phosphorus in yourblood. When you have Chronic Kidney Disease (CKD) your

    kidneys cannot remove phosphorus very well. High phospho-rus levels can cause damage to your body. Extra phosphoruscauses body changes that pull calcium out of your bones, mak-ing them weak. High phosphorus and calcium levels also leadto dangerous calcium deposits in blood vessels, lungs, eyes,and heart. Phosphorus and calcium control is very importantfor your overall health.

    A normal phosphorus level is 3.5 to 5.5 mg/dL. Ask your doc-tor or dietician for your last phosphorus test result. Dialysiscan remove some phosphorus from your blood but it is impor-tant for you to understand how to limit build up of phosphorus

    Heart of the Matter:Blood Pressure and Your Kidneys

    What does high blood pressure mean to you?High blood pressure and kidney disease are two common con-ditions, each affecting the other. High blood pressure causeskidney disease and chronic kidney disease (CKD) causes highblood pressure. More important, both conditions increase therisk of heart disease and stroke. Treatment of high blood pres-sure and kidney disease can reduce your chance of having aheart attack or stroke.

    The epidemic of high blood pressureApproximately 50 million adult Americans have high bloodpressure. The level of blood pressure increases with age.About 60 percent of the population over the age of 60 has highblood pressure. High blood pressure (also known as hyperten-sion) is a silent condition: that means that there are not usuallyany signs or symptoms. (cont. on pg. 5)

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    NKFK Chapter News

    Bowling Green

    The Bowling Green Chapter of the National Kidney Foundation of Kentucky joined with The MedicalCenter to present the 1 st Ride Out Loud Bike event held at Chaneys Dairy Barn. The event was a greatsuccess with 175 riders coming out to support the NKFK. The cyclists had the opportunity to learn aboutprevention of kidney disease and sign up to be an organ donor with the Kentucky organ donor registry.Thanks to our contributing sponsors: Bowling Green Bike Club, KODA, Citizens First Bank and FranklinBank and Trust. The event raised $3,500.00 to benefit programs and services of the NKFK. Thanks to allthe volunteers for your time and talent. Mark your calendars: 2 nd Annual Ride Out Loud will be held onAugust 16, 2008 at Chaneys. Please plan to join us.

    Lexington

    The Lexington Chapter meets the 4 th Friday of even months at the Kentucky Clinic. The next meeting willbe October 26, 2007 at 11:30am in Room J005. The chapter is instrumental in bringing the NationalKidney Foundation of Kentucky (NKFK) programs and services to the Lexington area. We have severalprojects in development and all those interested in supporting the NKFK mission are encouraged to par-ticipate. For more information, please contact Lisa Allgood at 1-800-737-5433 .

    If you are interested in attending a chapter meeting, please contact the NKFK at 502-585-5433.

    Ma rk your Calenda r! 2007 & 2008 Events

    Program Events

    October 13Louisville

    Magazine St. 7th DayAdventist Church

    October 16Maysville

    Boys & Girls Club

    November 1Henderson

    Location TBA

    November 10Richmond

    Location TBA

    November 16Paris

    Location TBA

    Support Group2nd Thursday every month

    Call for information

    Special Events

    NKFK GalaMarch 8, 2008

    HyattDowntown Louisville

    Turn yourtrash into

    cash!

    Recycle yourempty ink jet andtoner cartridges,and cell phonesfor the NKFK !

    The NKFK receives $2-$67.50for every cartridge and cell

    phonedonated!

    For more information, please contactJohanna Clapp at 502-585-5433 or

    [email protected]!

    KEEP Screenings

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    Phosphorus and Your CKD Diet (c ont. from pg. 1)

    You can keep your phosphorus level normal by understanding your diet and medications for phosphorus control.You will need to take medicines called phosphorus binders to help keep phosphorus in the foods you eat fromgetting into your blood. Your dietician and doctor will help you with this. Below is a list of foods high in phos-phorus.

    High-Phosphorus foods to limit or avoid

    Dairy Foods Milk Hard Cheeses(American, cheddar, Swiss)YogurtIce Cream

    Pudding/CustardCottage CheeseCream Soups

    Dried beans and peas Kidney beansLima beansPinto beansPork and beansBaked beansSoy beans

    Garbanzo beans(chick peas)LentilsSplit peasBlack-eyed peas

    Whole Grains Bran CerealsWheat germOatmeal

    Beverages Dark ColasBeer

    Drinks made with milk Canned ice teas

    Nuts and Seeds AlmondsCashewsPistachiosSunflower seeds

    PeanutsPeanut butter

    Other foods Organ meats (liver, kidneys,sweetbreads)SardinesClams, oystersChocolate

    TofuQuick breads from boxed mixes(cornbread, corn muffins, bis-cuits)Pancakes, waffles from boxedmixes

    article cont. on pg. 4)

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    Your doctor may order a medicine called a phosphate binder for you to take with meals and snacks. This medi-cine will help control the amount of phosphorus your body absorbs from the foods you eat. There are many dif-ferent kinds of phosphate binders. Pills, chewable tablets, and powders are available. Some types also containcalcium, while others do not. You should only take the phosphate binder that is ordered by your doctor or dieti-cian.

    When your phosphate level is too high, think about your diet and substitute lower phosphorus foods for a while.Talk to your dietitian and doctor about making changes in your diet and ask about your phosphate binder pre-scription.

    Suggestions for lowering phosphorus in your diet

    Phosphorus and Your CKD Diet (c ont. from pg. 3)

    IINSTEAD OF THESEHIGH-PHOSPHORUS FOODS

    TRY THESELOW-PHOSPHORUS FOODS

    1 cup milks (230 mg)* 1 cup non-dairy creamer (100mg)Or 1/2 cup milk (115 mg)

    1 cup cream soup madewith milk (275 mg)

    1 cup cream soup made with water (90 mg)

    1 ounce hard cheese such as American,cheddar, muenster, Swiss (145 mg)

    1 ounce cream cheese (30 mg)

    1/2 cup ice cream (80 mg) 1/2 cup sherbet or 1 popsicle (0 mg)

    12 oz can cola (55 mg) 12 oz can non-cola such as ginger ale orlemon soda (3 mg)

    1/2 cup lima or pinto beans (100 mg) 1/2 cup mixed vegetables or green beans(35 mg)

    1/2 cup of pudding or custard made withmilk (150 mg)

    1/2 cup pudding or custard made with non-dairy creamer (50 mg)

    1/2 cup peanuts (200 mg) 1 1/2 cups light salt/low fat popcorn (35mg)

    1 1/2 oz chocolate bar (125 mg) 1 1/2 oz hard candy in fruit flavors or jellybeans (3 mg)

    2/3 cup oatmeal (130 mg) 2/3 cup cream of wheat, cream of rice orgrits (40 mg)

    1/2 cup bran cereal (140-260 mg) 1/2 cup non-bran cereal, such as shreddedwheat, rice cereals, corn flakes (50-100 mg)

    Article from National Kidney Foundation, www.kidney.org.* Numbers in parenthesis tell how much phosphorus is in the food.

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    OKAY, SO YOU ARE SAYING I SHOULD EATMORE MEAT, drink less milk, avoid canned soups,lunch meats, hot dogs, pickles and olives and limitoranges, bananas, potatoes and tomatoes. I need toincrease the number of binders I take: three after eachmeal and two after each snack. Is that it?

    Does this sound familiar? Month after month, you arecounseled by your dietitian to achieve lab resultswithin the desirable ranges. Due to the limitations of the kidney diet, you may find it difficult, or even de-pressing, to follow such a diet. Sometimes I justwant to give up eating. By the time I figure out some-thing to eat, I am not even hungry anymore, com-mented one person on dialysis. Or I want to eat eve-rything in my kitchen to rebel against the diet! sheadded.

    Dealing with the complexities of the kidney diet andother lifestyle changes may contribute to feelings of hopelessness, pessimism, sadness and other symptomsof depression, which can make you apathetic and lesslikely to care for your own physical needs.

    Depression is not a weakness or a character flaw; it,too, is a medical illness. Depression can affect yourability to sleep, work, and get along with others.Peole who are depressed may find daily tasks such asmeal planning, shopping, food preparation and eveneating to be a big struggle. As a result of poor eatingdue to depression, you may lose weight, have a lowprotein (albumin level), or, in some cases, you mayovereat and have unplanned or unwanted weight gain.

    If you think you are depressed over your diet, talk toyour dietitian about how you are feeling. Togetheryou can develop ideas about how to help you staypositive about your diet. These could include:

    Setting short-term goals for your lab values.Perhaps the idea of eating more protein, eatingless potassium and phosphorus and drinking lessfluid is overwhelming. Work with your healthcare team to decide where to prioritize. It may beeasier for you to choose one lab value that is notwithin goal range and take steps to improve it.For example, you may decide to work on reducingyour phosphorus level first. Try substituting onelow phosphorus food item for one higher in phos-phorus (try sherbet or sorbet instead of ice cream).

    Achieving a series of small, easy goals helps buildyour confidence and improve your health.Looking through kidney cookbooks at your locallibrary or bookstore for menu ideas. There arealso Web sites that offer many kidney-friendly reci-pes. Try www.kidney.org/patients/cookbook,www.culinarykidneycooks.com orwww.ikidney.com. Decide to try a new recipe onceper week and share your favorites with other peoplewho are on dialysis and your dietician. You willalso be helping others who are dealing with thesame challenges of the kidney diet.Preparing larger quantities of food and freezingleftovers. Quickly reheating is a breeze when youare feeling too tired to cook from scratch. Somepeople find they are worn out after their treatment,causing them to skip meals. Enjoying leftovers af-ter treatment can be a quick and easy way to im-prove nutrition and boost your energy level.Buying frozen dinners that are lower in sodium,potassium and phosphorus. Some nutrition labelsnow also list the food's potassium content. If youfind one you like without nutrient information, seeyour dietitian for guidance.Eating with others if possible . Pleasant conversa-tion leads to a relaxed environment. If you livealone, consider inviting an understanding friend,relative, or even another person who is on dialysisover for companionship during mealtime. Do notbe afraid to ask them to bring a dish to share. Youmay find that many people want to lend a helpinghand.Eating several small meals throughout the daymay help increase the amount you eat, making surethat you take in enough calories during times youmay have a smaller appetite or might not feel sohungry. Try a mid-morning and/or mid-afternoonsnack.

    Many factors come into play with both the causes andthe solutions for depression, including nutrition anddiet. Having a positive attitude toward your kidneydiet, while forming new eating habits (what, where,when and with whom you eat) can play a role in im-proving your physical health and your mental outlook.

    By Cathy Keller, RD, LDNArticle from Family Focus, Vol.14, No. 3, pg. 7

    Dont Let Your Diet Get You Down!

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    Chronic kidney disease is a public health issue affect-ing 20 million Americans. The NKFK Kidney Walk,held September 15, brought together dialysis patients,transplant recipients, donor families, and others in the

    medical community to celebrate life and walk the pathof prevention of kidney disease.

    Executive Director, Lisa Allgood, welcomed over 300walkers and encouraged all to continue the fightagainst kidney disease. Walkers of all ages enjoyedthe two mile walk at Waterfront Park and visited theWellness Tent, Kids Corner Activities, and enjoyedthe food provided by Qdoba and Sara Lee.

    Thanks to all who supported this years Kidney Walk and a special thanks to our volunteers. The Kidney

    Walk wouldnt be successful without you!

    Side by Side for Life: Kidney Walk 2007

    Gift of Life Gala 2008

    Planning has begun on next years Gift of LifeGala to be held on March 8, 2008 at the Hyatt Re-gency in Louisville. Chuck and Sue Fischesserare the co-chairs of the event again this year andwe also welcome two new committee members;Bill DAntoni and Tina Kauffmann. Bill and Tinaare new members of the NKFK Board of Direc-tors. The gala is an uplifting evening of dining,dancing, a live and silent auction and award pres-entations to several outstanding honorees. Nextyears gala entertainment will feature The Beatlestribute band Eight Days A Week. Please mark this on your calendar as a dont miss event!

    K i d n e y W a l k A w a r d s

    Dialysis Team ChallengeLargest Team

    Ni g h t H a w k s F M C Ol d h a m

    Dialysis Team ChallengeTop Fundraiser

    Ni g h t H a w k s F M C Ol d h a m

    Largest TeamP h i S i g m a S i g m a Ga m m a T a u

    Top FundraiserS a s s y S i s t e r I I I

    Congratulations!!

    And a Special Thanks to our CommitteeMembers!

    Do you like participating in theKidney Walk and want to be more

    involved?

    Then join the Kidney WalkCommittee!

    Meetings are held monthly beginning in January.

    For more information, please call the NKFK at502-585-5433.

    Ride Out Loud 2007

    Off to agreat start!175 riders

    participated in this 1st annualevent.

    A young participant decoratesher helmet before therace.

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    Volunteer Spotlight: Jenny W rightington & Terra Jackson

    NKFK Volunteer Opportunities

    Terra and Jenny have been dedicated volunteers of the NKFK for over 5years. Terra has been an instrumental part of the Gala committee for

    three years and participated as a team captain along with her sister Jennyfor the Kidney Walk. Terra and Jenny have raised more than $10,000for the Kidney Walk within the past three years. Jenny has also servedas part of the NKF Program Committee, Walk Committee and GalaCommittee. The time and talent that these sisters have given to our or-ganization has been tremendous and very much appreciated!

    Why did you become involved with the NKFK?TERRA: I guess it is embedded in my 'person' to GIVE BACK. Mymother taught us at a very young age that there are others in the worldthat have it so much worse off than we do and we should be grateful for

    all that God has given us. My sister has suffered with kidney disease for many years, so NKFK is an organizationI gravitated to naturally and with which I am passionate about being involved.

    JENNY: I became involved as this directly affects me as a kidney dialysis patient. I have first hand experiencewith what a grueling struggle life can be for those on dialysis. If there is anything I can do to improve the qualityof life for those on dialysis or prevent others from having the need to go on dialysis, I would gladly do it . ,

    What is the importance of the NKFK mission for you?TERRA: Working with the foundation helps me to gain a better understanding of what my sister is workingthrough with her kidney disease. It also helps to keep me informed of opportunities for her to achieve a bet-ter quality of life down the road. Although I am involved with many charities, The National Kidney Foundationof Kentucky holds a special place in my heart because I have witnessed my sister's long struggle with kidney dis-ease and, by being involved with NKFK, I feel I am working alongside her in her fight.

    JENNY: I really believe in the mission.. I also feel in Louisville/KY we have too many people going on kidneydialysis machines because of our lifestyles, poor nutrition, environmental issues, lack of education on healthylifestyles, addressing early warning signs of high blood pressure etc.. I do not know but hope we can get a handleon the matter soon and at a minimum make people aware of things they can control.

    KEEP ScreeningsKidneys in theClassroomHealth FairsNKFK Golf EventsKidney Walk

    CKD EducationProgramHealth FairsGift of Life Gala

    Sassy Sisters Terra and Jenny

    To find out more about NKFK volunteer opportunities,

    please contact Laura Temple at 1-800-737-5433 or [email protected]

    Welcome Aboard!!

    The NKFK is proud to have the fol-lowing join the Board of Directors for

    2007.

    Jim CrouchBill DAntoni

    Tina KauffmanMary Lou Marzian

    Marissa VincentColleen Wilson

    Thank you for your commitment and we lookforward to working with you!

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    My story begins on New Years Eve 1998. I woke that morningwith a rash all over my body. I went to the immediate care centerand the doctor said it was the hives. He also said to go to my family

    doctor and have my blood pressure checked out because it was high.The following week I went to my family doctor and after some testshe told me I had a problem with my kidneys and sent me to see aspecialist. The kidney specialist ran all kinds of tests and it wasdetermined that due to years of undetected high blood pressure, mykidneys had been damaged severely and I would need a transplant.

    Several of my family and friends were tested for a possible livingdonor but none were candidates. My wife, Judy, went to be tested

    without telling anyone and was told it would be highly unlikely that she would be a match. After all the testswere run, we received the good news. Judy was a perfect match and could be a living donor for me. At the timewe were also told that it was a one in ten million chance of being a match with a non-blood relative donor. Judy

    was my wife and now the person who could give me a kidney and new lease on life. This was a miracle and agift from God, one that we had all prayed for. On June 12, 2000, we had the transplant at Jewish Hospital.

    I got interested in the Transplant Games by reading a pamphlet I picked up while having my blood work done atJewish Hospital. I noticed that one of the sports that were included in the games was bowling. Well you need sayno more, Ive been a bowler all my life! Ive bowled in organized leagues since I was 15 years old, and have justbegun my 35 th season as a secretary of adult leagues. Bowling is the one thing that got me through my illness; itgave me something to look forward to.

    The 2006 Transplant Games was a great experience for me. It was my first of many games to come, I hope. Youmeet lots of nice people with interesting stories. I urge all Transplant recipients to become involved regardless of your skill level. It will be one of the eye opening experiences of your life, I promise you that. At the games, I

    bowled next to a man that had two artificial legs along withbeing a transplant recipient. He was not that good of a bowlerbut he was out there trying! The 2008 Transplant Games willbe held this coming July in Pittsburgh. Get involved withTeam Kentucky! You will make new friends and you mightwin yourself a gold medal. Join Team Kentucky as we pre-pare for the games in Pittsburgh, Mark McGaha

    To learn more about the US TransplantGames and joining Team Kentucky, pleasecontact Lisa Allgood, Team Manager, at1-800-737-5433 or [email protected].

    Going for the Gold:Team Kentucky Athlete Ma rk McGa ha

    Judy and Mark McGaha

    Prevention of high blood pressure and kidney disease in high risk individualsScreening studies have shown that first degree relatives of people with kidney disease (parents, brothers, andsisters) are more likely to develop high blood pressure and kidney disease than those without a close relativewith kidney disease or high blood pressure. People with a family history of kidney disease should have regu-lar blood pressure checks so that high blood pressure can be found early, and treated. With early and effec-tive treatment, people with high blood pressure can have fewer problems such as heart disease, kidney diseaseand stroke, and live longer and better lives.

    Written by Katrin Uhlig, MD and Andrew S. Levey.Article from Kidney Care, Vol. 1, No. 1

    Heart of the Ma tter (co nt. from p g. 5)

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    I n L oving M emoryThe follow ing ind ividuals do nate d to the Nationa l Kid ney Found a tion o f Kentuc ky in m emo ry of

    loved on es from June 15, 2007 through September 6, 2007 . We a re ve ry gra teful for these tho ug htfulc ontribu tions and wish to express our symp a thy to the fam ily and friends of the d ec ea sed .

    In Memory of Betty LoftonMary H. BallardScott Gerstner, Lesley Henney, GeorgeMcGaha, Keith Sims, Karen WhalenSamuel LoftonJoseph C. Bell, DMDKathryn Voiers

    In Memory of Sandra Baker Virginia MorganLeora & Allen Branham

    In Memory of Nancy GarlingMarjorie WilsonMary Larson

    In Memory of Robert E. LawsonMr. & Mrs. Omar BarbourKathryn & HC Bond, Jr.Phyllis GoldsteinErnestine Thompson

    In Memory of Timi Jean McClellanTom & Linda Stephens, Jerry & SuzieDamron, & Richard & Carol Damron

    In Memory of Darlene Eckert Dr. Jill Watson

    In Memory of Miles BaconMr. & Mrs. Cleo RoseberryJanet PateMr. & Mrs. Dennis CoghillMr. & Mrs. Ken MoranZelma ComengoreMr. & Mrs. Raymond LeeMr. & Mrs. George SchirmerMr. & Mrs. Jerry Herlow

    In Memory of Tommy Leek Kathy BurkhardtJohn Renaker IIERic & Becky MooreJim & Jan FromanKellie & Dennis BoazRobert & Patricia FromanWilliam & Leola Wailer

    In Memory of Malcolm CoryEllen CruzHarry CodyZenor, Arrenholze and Arrenholz-Zelevitz FamiliesJeanette SchoopLiane GarrettAmanda Rose & Mike BrutscherKathryn CruzMyra DeGrootAshland Family

    In Memory of Jenny SparksTony & Virginia Crowder

    In Memory of Wendy BuchanonElayne Borders

    In Memory of Eddie MyersGene & Ann Edwards

    In Memory of Janene Ford Seven Counties Services

    In Memory of John Ray PiercyJulie PiercyWillie & Donna PiercyDonald MullinsBob & Esther GieserMary Yunt

    In Memory of Mary HillMarion County Cattlemen Association

    In Memory of Loren Bright Hanover College Development Staff

    In Memory of Valerie VickersBob & Becky FarrBobby & Mary Belle HollandJackson Purchase, ACABeverly Shores Church of Christ

    In Memory of Edna Pauline BrownJames & Alice BeckhamCarole JamesEmmett A. Meeks, Emmett & DebbieMeeks, & Leonard & Marily BeverleyLennie & Kelley BeverleyRichard & Eddie SpiersBobby & Darlene Graham

    In Memory of Raenelda LustyKenny & Terri FrenchJoyce Ellis

    Kelli & Dennis BoazStella Leek

    In Memory of Ronald ThompsonGeneral John J. Pershing MemorialHospitalMr. & Mrs. Ben Clark & Ann Helen

    In Memory of Betty Jo Burchett Mr. & Mrs. Ida C. HallGwendolyn Adcock Camille DeanLorene Carney & Georgene McKenzieStephen GreenRobert & Mattie Harris

    In Memory of Peggy Brooner Rita & A.K. StaytonBAS Family & Friends fromGeography

    In Memory of Mark McAteeMikhail GoldenfulMary ParsleyLisa Murphy

    In Memory of Tony Crowder, Sr.

    Joseph HamiltonRobert & Sharon Niemeier

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    Board of DirectorsJanet Connell

    R. Scott Cornell, MDJim Crouch

    Bill DAntoniJan Day

    Chuck FischesserTina Kauffman

    Stefan Kiessling, MDLarry KozloveJeff Leonard

    Mary Lou MarzianNewton McCravyPatrick NorthamMichael Parlier

    Sanford Reikes, MDMarissa VincentColleen Wilson

    Staff Lisa Allgood, Executive Director

    [email protected]

    Johanna Clapp, Admin. Assistant [email protected]

    Laura Temple, Program [email protected]

    Leann Wiley, [email protected]

    250 E. Liberty StreetSuite 710Louisville, KY 40202(502) 585-5433(502) 585-1445 (fax)www.nkfk.org

    Kidney Connectionis now on the web!

    Please visit us atwww.nkfk.org!

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