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Public Health Data Standards Consortium

Web-Based Resource Center Committee

Vivian Auld National Library of Medicine NIH, HHS

Michelle Williamson Centers for Disease Control and Prevention

National Center for Health Statistics

May 25, 2005

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PHDSC Website

http://www.phdatastandards.info

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WRC Committee Members Noam Arzt, President

HLN Consulting LLC

Robert Davis, Consultant,National Center for Health Statistics (NCHS)Centers for Disease Control and Prevention (CDC)

Tom DoremusIndependent Consultant

Marjorie Greenberg, Chief,Classifications and Public Health Data StandardsNCHS/CDC

Vicki Hohner, Senior Consultant Fox Systems, Inc.

Hetty Khan, Health Informatics Specialist,NCHS/CDC

Katherine Kvale, Epidemiologist,Wisconsin Department of Health and Family Services,Division of Public Health

Denise Love, Executive Director,National Association of Health Data Organizations (NAHDO)

Anna Orlova, PHDSC Consulting Executive Director and Associate Professor,Johns Hopkins School of Public Health

Walter Suarez, President and CEO,Midwest Center for HIPAA Education

Patina Zarcone, Informatics and LIM Systems Manager,Association of Public Health Laboratories

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WRC Committee Goals

Oversee the development and maintenance of the Public Health Data Standards Consortium’s website.

Provide resources and guidance for local, State, and national organizations to participate in standards development activities, encourage adoption and improvement of existing standards, and to facilitate standards implementation.

  Develop and maintain a Web-accessible list of existing health data standards

and standards development efforts, providing their context and identifying their relevance to public health. 

Disseminate educational materials utilizing various Web-based media to address the needs of public health practitioners and educators as related to health data standardization.

Explore enhancement options for the next generation of the Web-Based Resource Center.

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WRC Committee Activities 2004 – 2005

Launched the Second Generation WRC-May 2004

Developed Principles, Guidelines and Processes for the Review and Maintenance of the Web-Based Resource Center (WRC)

Began Implementing the WRC Short-Term Marketing Plan

Identified potential areas for content development and website improvements - 3rd generation WRC

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WRC Committee Activities 2004 – 2005

Launched the Second Generation WRC * * * * * * * * * May 2004 * * * * * * * * * *

Migrated Organizational Information from NCHS and Expanded Information

Migrated HCSDR Guide Information from NAHDO

Updated PH Tutorials and Annotated Bibliography

Added Educational Materials (papers, case studies, presentations)

Health Care Services Data Reporting Guide

Guidance for Local Health Departments – HIPAA Privacy Rule

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WRC Committee Activities 2004 – 2005

Developed Principles, Guidelines and Processes for the Review and Maintenance of the Web-Based Resource Center.

General Principles for the WRC

Guidelines for Posting, Revising and Updating Information

Principles for Privacy and Confidentiality

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Where is the WRC????

“The WRC is the best kept secret."

Marjorie GreenbergVP Federal Affairs, PHDSCChief, Classifications and Public Health Data StandardsCDC/NCHS

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WRC Committee Activities 2004 – 2005

Began Implementing the WRC Short-Term Marketing Plan Goal1: Increase in awareness and first time use of

the WRC Goal 2: Increase in use of the WRC by new and

returning users Goal 3: Solicitation of contributions and feedback

from WRC users Goal 4: Expansion of PHDSC membership

through the WRC

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WRC Committee Activities 2004 – 2005

Identified potential areas for content development and website improvements - 3rd generation WRC

Redesign Home Page Add Privacy Policy Enhance Committee’s Pages and Hot Topics Educational Materials for PH and Health

Informatics Academic Communities Update Membership Page Conduct Usability Study

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Usability Study

Usability Study

Consulted with Laura Larsson, Cedar Collaboration

Email: larsson@cedarc.info Usability Test Suggestions Evaluation of the WRC

Feedback from Tom Doremus, past Chair, WRC

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Expert Recommendations

Home Page More Concise Intended Audience Needs to be ClearGlossary Needs to Be More PrevalentSite Needs PersonalizationIncrease Ranking within Public Search

EnginesUsability Study to Guide Future

Development

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Future Activities

Usability Study and Analysis

Prioritize and implement additional strategies in the Short-Term Marketing Plan and evaluate effectiveness of previous marketing efforts

Facilitate the Development of the 3rd Generation WRC

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Financial Support for WRC

National Center for Health Statistics has provided financial support for the WRC for:Technical SupportContent DevelopmentTemporary Webmaster

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QUESTIONS