'thank you, TjC resders, f o r your Census returns. Your rcscurse t o suggestions for l eg i s l a t ion for the severely disabled vas ave l i whelming (see page 10). Clesrly, t h i s is our dlost urgent concern and hope. On the fecing psge, we proudly repor t the crusade by a p o u p of California polios t o e f feo t remedial s t a t e legis la t ion.

Although our present frightening f inancia l problems have ar isen because of the precipitous vithdrsval by the National Foundation of i t s support of home care attendants, we are sti l l most appre- c i a t ive of the astounding care of polios by the former NFIP. No other ~ a u p of handicapped ever fared so well. We survived - be- cause of the respira tory centers, care,and equipment i t then sup ported. We thrived - because i n a dramatic experiment t o save hospi ta l cas t s , it pioneered returning us t o our homes with r e p pira tory equipment and attendant oere.

Continuing survival and expected longevity involve finan- c i a l needs that great ly exceed those which could be borne inde- f i n i t e l y by a voluntary organization. Clearly, the responsibi l i ty now l i e s with a coordination of sss is tancs from County, Sta te and Federal governments.

Without assistance: some of us are exhausting our f inanc ia l means to r e t a i n sn attendant; some of us are taking the chance of being l e f t alone, and running the r i s k of dying due t o lack of a t tent ion; some of us ere vegetating i n r e s t homes.

It i s a good investment t o keep us st home. We can d i rec t our households, manage our ohildren, end keep our famil ies together - IF we have en attendant t o take care of us and cook and uash,etc. We can run successful home businesses and a p p o r t our families - IF we have sn attendant t o t&s care of us and act ss see re tag and ass is tant .

We a r e l iv ing i n an era of increased awareness o f the needs m p o t e n t i a l i t i e s of the t o t a l l y disabled. The concerted campaign by California polios for s t a t e l eg i s l a t ion points one way ue can t ransla te concern and hope in to action.

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~ 0 1 . 4 No.2 (4 th Year) Chsgrin F a l l s , Springtime, 1961

I j 6 / 5 Furs 'Trapped9 For

Contest Winners me of i he " s q u i r r e l i e s t " oontes ts ever

staged reached a happy conclusion with six TjG readers bedecked in ermine, mirk, sea l , lamb and s q u i r r e l capes. The contes tants i n our Squ i r r e l Cape Contast submitted lists of words made from the word "squi r re ls . "

A s t o r y i n our l o c a l paper inspi red gene- rous f r i e n d s t o r a l l y round and they deljgM ed u s with s i x luxur ious fu r capes end a robe f o r pr izes .

F i r s t pr ize winner, with a l ove ly J a p n - ese mi& cape,was Jo Ann Goodin of Det ro i t , Michigan. Marilyn Gamble of Mechsniesville, Iowa, received a s q u i r r e l cape. V io to r i s Rodriguez a t Goldwetar Memorial Hospital in New Ymk is the envy of her f r i ends there i n her s e a l sk in c a p .

Aon Adams, e mink cape winner from Jaek- sonvi l le , F lor ida , hopes fo r c h i l l y n ights . Miokie McGrew of Cleveland won an exc i t i ng ermine wrap. Susan Armbrseht of Cleveland Heights p a r t i e s on her ambulance cot warmed by an e s o t e r i c fur s l e igh robe. Jean Foul- t e r of Ontario, Canada, i s the new owner of a Pers ian lamb cape and muff.

We wish every e n t r a n t could have been a winner, but we r an out of fu r ry f r iends .

World Premiere of Leplinis Composition

RFSFO WINS COETED COMMISSION

Respo Emanuel Leplin, composer, poet , sr- tist and ex-conductor,von a coveted eommis- s ion wi th the f ee running i n t o four m m f i w e s t o compose l i t u r g i c a l music fo r the Peninsula . Temple Beth E l of San Msteo, Califor- : nia . The commission was awarded a f t e r s t i f f world - wide competition. H i s 31 eompositions,playsd by symphony orches- t r a s around the uorld,convinced the

Emnnuel LepIio committee t h a t Lep- l i n was t h e i r man. The premiere was held February 5 i n h i s home town of San Mateo. &en po l io s t ruck i n 1954, Msnny was on

the threshold of fsme 6 s a oomposer-eonduc- t o r . He has continued h i s work u i t h the use of only t h r ee f ingers .

Ci rcula t ion: 4,000

California PoZios Campaign

For Urgent State Legislation

severe ly parslyzed po l io s of the San Frs* c isco area,through t h e i r bimonthly publica- t ion , THE SPOKFzY:.AK," are campaigning t o obtain adequate and f a i r l e g i s l a t i o n fo r a l l severely disabled - whatever the cause. Dr. Leon Lewis, former head of Fairmont

Hosp i t a l ' s Respiratory and Rehabi l i ta t ion Center, and 3ob Penn, Pres ident of the Bay Counties Post-Polio Association, l e ad the crusade. Charles 8. Lyser i s the s p i r i t e d e d i t o r of t h e i r m i l i t a n t publication.

The Associstion "as shocked i n t o rrotion when the National Foundation suddenly an- nounced t h a t i t was d r a s t i c a l l y c u r t a i l i n g a t tendant care and withdrawing i ts support of the Fairmont Respi ra tory Center.

A 1 1 severely d isabled in Ca l i fo rn i a are invi ted t o jo in lg wri t ing to: Sharon Mul- l a l y , 485 Cascade Rd., San Leondro, Cal i f . Every member w i l l a c t as a "Liaison," ale*% ed t o m i t e h i s S ta te representa t ive when remedial l e g i s l a t i o n i s introduced.

Same objeotives: (1) A "Breather 's Poun- detion" t o e s t a b l i s h a treatment cen t e r fo r d isabled edults:(2) Madificatiqn of the &?I) (Aid t o the Tota l ly Disabled) to include f i nancis l r ev i s ions , such as a t tendent care.

r 8 G A L t T T t t K I :>$, ART SHOW ON TUUR AGA, In Navember the Internat ional Psrslyz-

a -Iurnn of odds a of .. ed Ar t i s t s Exhibit came "home." The paint-

. - I k.t; cowaittee. I blower. The address of Thokson H e s ~ i r a t i o n

ir;)MWSON PURCHASES HUXLFP COMPANY '%Thompson Respiration Products, Ine. of

Boulder. Colorado announced the ~ w c h a s e of

Products i s Boulder Industr ia l park; Boul- PARALYZED VETWANS GET A LIFT der, Colorado. M r . Harr is A. Thompson, the

PFC,,A,, P"n,n s=~ . ,>#cE 2 Under Public Law 8L211, which be=- President, i nv i t e s any of us t o c a l l Ca l l e t

the respira tory manufacturing and s a l e s fa- c i l i t i e s of the Technicon-Huxley Company of Chauncey, New York, and has moved these fa- c i l i t i e s t o t h e i r p lant i n Boulder. Thomp son w i l l continue t o manufacture the cow ple te l i n e of Huxley Hespiretors, including the Hospital and Portable Respirator, the Multi-Lung, the m e m o b e l t and the Farr A c pirator. They w i l l a l s o supply complete pa r t s and service f o r a l l Huxley equupment. Thompson w i l l continue t h e i r o w l i n e of respir$tors: the Portable far use with the chest she l l or ouirsss , the Bantam f o r po& t ive Dresswe or Pneumobelt. and the Zeohrr

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5

ings were show during Dsoember a t many 1- ea l Art Bazaar8 and Christmas sales. In Janusry,the Exhibit was freshened and spark- ed with new display s igns of the a r t i s t s . Some of the works w r e loaned f o r display and sa le i n decorating shops. Others were pecked up for a tour of small ga l l e r i e s . In ea r ly February, it vent to Mary Washington College i n Fredericksburg, Virginia. Then, t o Stra t ford College in Danville, Virginia. Next, t o the G e a r ~ e t o m Art Fair i n George- tom, Washington, D.C. where it was jo int ly sponsored by the Committee for the Handicap oed. Peoole-to-People Proerem, and the Fine

$9, cL.EV~AND&~~ VISITS RESFU M AFRICA \Ji Ian Bompas, res ident of the Infectious Diseases Hospital i n Nairobi, Br i t i sh East Africa, and Donald S. Carmichael, executive

-. - ~. ~~~ ~ ~~~

Show sbaut h i s v i s i t . A s a r e su l t , the pa- t i e n t s a t Goldwater received 5000 Christmas cards and presents. V ic to r i s Rodriguez end her f r iends are sttemgting t o thank a l l the

effect ive July 1, 1960, cer te in paraplcgio veterans snd most quadriplegics, may apply t o the VA f o r e pa t i en t l i f t e r , i f they are receiving a pension from the VA fo r t h e i r non-service connected d i s a b i l i t i e s .

of the Stouffer Corporation, were brought together by TjG ed i to r s t h i s f a l l when M r . Carmichael was in Kenya on an animal t ing s a f a r i for t h e Cleveland Zoo. Ian i s s student of Bfrioan wild l i f e and t r ave l s artensivalu i n a O.K.W. van t o the enme

. ~ ~- . . " . -

Christmas card hesigns to M r . Carmichsel. lpeople who sent cards and gif ts .

THANK YOU, JOSE MELIS! 9 ~ ~ ~ . Melis. ta lented p ian i s t on the Jack Paar Show, v i s i t e d Goldwater Respirrr tory Center, New York City, before Chris* and l a t e r to ld the Paar fans on the Late

i

with eny respira tory problem. The telephone number i s H I 3-3350 i n Boulder.

bed v i t h a permsnent d i s a b i l i t y , you are e- l i g i b l e for PN's Second Annual Poetry Con- t e s t . Poem must not exceed 1 6 l ines . It must be m i t t e n an one s ide of psper only. Your name and address must appear on the back of your entry, with the date and type of your disabi l i ty . F i r s t prize i s s 850 savings bond; Second, a $25 bond; and Third 8 $10 bond. Contest c loses April 30, 1961. Send your en t r i e s to: PRRAPLEGIA NEWS, 240 Lee Ave., Stroudsburg, Pennsylvania.

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Fi phonos, three clock radios, one $LOO ham radio re- oeiver, a s a i l boat, d i f ferent amounts of cash and s 60 horsepower outboard motor r e t a i l i n g a t $950 (one of the !p-- - 1 0 f i r s t prizes i n a contest drawing 250,000 e n t r i e s ) , I think you ' l l agree I do h o w what I ' m yaking shout. &-=----~ - You s t a r t by saving those l a b e l s and box tops you've . 4 -

been throwing away. (Your neighbors might help you). Read a book or two on contests, then get yourself a 25#

( 1; :

pocket dictionary, word finder and rhyming dictionary and s t a r t w i t i n g .

I d idn ' t win anything the f i r s t four months. Then my roommate and I took a contest course by mail. This t e l l s you, twice a month, a l l the current contests, who

, i s judging each and the tm of e n t r i e s each judging a- gency favors. This i s h o r n ss judging s l a n t and i s the most important thing t o how. It a l so gives pest win- ning en t r i e s f o r you t o study. It oost us $30 and it was the best 515 each of us ever scent. Contest Maea- zine ( 5 % ) is a l so a b ig help.

. I 've jus t sn 8 th grade education, so I am not br i l -

l i a n t , but I do work herd. The big thing i s perserver- snce. Don't s top entering even though you get i n a nc- winning slump for six months or more. One ga l I h o w of vent 11 months without winning s s ingle prize end then won a new car. ~ ~ ~ ~ . . ~.~~ - .-..

how to WIN Contests! by Enor Even i f you take one hour a day,each day f o r eonteat- Veterans Hospital ing and keep it up, I think you're bound t o win . I av- Wood, Wiseonsin erage one entry e day. Some of my biggest pr izes came

from e n t r i e s I planned while in the iron lung where I s ~ e n d 18 hours a day. 'I got polio i n 1%l, but consider myself quite for-

This pic ture of a $LOO remote Control FI being presented t o tunate because I can use one hand enough t o mite i f me was taken two months a f t e r s t a r t ing t o study a coures i n my am i s i. a sling. contesting. I 've been winning consis tent ly ever since. For the hams among you, my c a l l is K 9 G H T, r i g i s

I ' m not s e l l i n g contest courses,ss some Of You may be think- e Viking Rqnger, Hsl l feraf ters SXl01, and G W Tri-band ing. But when I t e l l you tha t I ' ve won t h i s ?II se t , four H i beam, 65 f e e t up - a l l paid f o r from contesting....

THE MAIL BOA

.. A GOOD m D Since I now have t o l i v e i n a spec i a l t y hosp i t a l in I t a l y

u i t h many p o l i o pa t i en t s , i t i s always s very g rea t joy t o u s here when the n ice TjC s r r i ve s . Then, we a l l t r y our very bes t t o t r a n s l a t e the English - elmost with complete success. It i s very commendable what has been done with a l l those technice l gadgets,and mast of a l l the unwavering per- s i s tenoe of the pol io pa t i en t s who adapt them for t h e i r use. I am very pleesed t h s t I receive a l e t t e r from a n i ce pol io g i r l in Indianapolis . Now we exchange l e t t e r s and t e l l each other our t roubles , and what i s newsworthy and i n t e r e s t i n g in our count r ies . It i s a g r ea t pleasure t o see how much an important country l i k e the United S t a t e s of America does t o h e l p and ease the suf fer ing of the needy pol io pa t i en t s . So please take my most profound tharks fo r the TjG from me e- crass the see.

FASOLT &LOIS, Goldrain 7L. Val Venosta Prov. Bolzsno, I t s l y - S u d t i r o l (ED: Above was t r a ,m German)

a. WAEI'IET A YOLUNTEEX WCMR I am going t o make myself a suc t ion machine soon.. .Only I

don ' t know how much suction t o apply....I think it would be very n ice t o have an a r t i c l e in the Gazette by a doctor.... So r t of s ques t ion and answer type of a r t i c l e where we... could wr i te i n fo r advice on mat ters l i k e the above.

ROBERT BFBITEN J R . , Box 33, Dunlay, Texas

.. ~ E T I N G S m om 50 m F R ~ S IN CRNADA When Mr. Mouatt of the Canadian Psraplegic Aasoc. gave u s

a oopy of TjG r ecen t ly , I was r a the r shocked t o r e a l i a s t h s t =,in t h i s Pavil ion of 50 r e sp i r a to ry pol ios , have had lit- t l e or no contaot u i t h o ther s imi l a r i n s t i t u t i o n s . It i s obvious, a f t e r reading your magazine, t h a t we could benef i t g r ea t l y i n learn ing what o ther people, l i k e ourselves, are doing fo r occupation, entertainment, remuneration, e t c . as well as new mechanical devices end o ther progressive ideas. Perhaps, we m y even have a few suggestions t h s t o the r s m y be i n t e r e s t ed i n lrnoving about. Many of u s hsve been here f o r 7 or 8 years and we ' l l probably be here f o r many more.. We are anxious t o have the names of o ther groups with simi- l a r a c t i v i t i e s in the many o ther i n s t i t u t i o n s .

BOB GORWN, Pearson Pol io P a d l i o n , 700 West 57th Ave., Vencouver, 14, B.C., Canada .. "HAMS" I N THB U.K. I am now Secre tary of the Radio Amateur Inval id & Bedfast

Club. This Club i s 1- membership of a l l types of disabl- ed persons. I have made note of Joel Carpenter (See Bulle- tin Board) and h i s t ransmi t t ing gear, end w i l l put the ad- dress i n our publ ica t ion , the "Radial"...Cheers fo r now and please pass on my regards t o Lamp. ... and ask him when do I hear from him again K -.- 7

BILL HARRIS JR (G3DPH), 4 Glanvi l le Place, Kesgrave, Ipswich, England

.. LEFT ALONE!! I had e full day l ive- in attsndant-housekeeper u n t i l Oo-

taber , 1959, when NFIP changed t h e i r policy. The County wanted t o put my ch i ld r sn in f o s t e r homes, and u s t o s e l l our home, and me t o l i v e i n a r e s t home o r something l i k e t ha t . We a l l refused. I have one good e m , so I decided I could s t ay on my rooking bed alone with a telephone. My rocking bed and my Cof-flator are plugged i n t o an o u t l e t , which i s a l s o connected t o an sut-generator. My 1 2 yeer o ld daushter comes home st lunch time and e ives me the bed- - " - pan and my lunch. A t 4, when my 1 4 year o ld son g e t s home, they g e t me up and I supelvisa them i n the cooking of din- ner. My husband cares fo r me in the mornings and evenings, and my 3 chi ldren (7 year o ld son, too) do a l l the cooking and the housework.

NlLME WITHHELD

My husband has what i s considered a good job i n our t o m , but ue cannot a f fo rd t o pey even part-time help. Our k ids care f o r me a f t e r school. My 7 4 year o ld mother-in-law i s not ab le t o care f o r me. She does our laundry and g e t s our evening meal.

NAME WITHXELD .. A N o m QUXEN I N ENGLAND I get suoh enjoyment reading a l l a b m t my "fellow clan."

I ' v e been i n the "clan" f o r 4 years . Your Gazette makes me f e e l l i k e a Queen on s throne!

JERN HEAlWCOTE,3 Broomfield Lsne, Lymington, Hants, Ehg. .. A SATISFIED CARAVAN "CUSTOMW" I have resided here f o r near ly 1 5 months, and I have j u s t

hsd my f i r s t t a s t e of freedom: a most enjoyable and exoi t - i n g usek's holiday, spent with my wife and two sons, Pe t e r and Paul, i n t h e I.P.F. Caravan. (See pages 2&21)

EZDFRICK DAVIS, B i o r s d e a n Hosp., Portsmouth, b g l a n d

I was studying i n physical education oollege, in Madrss, before pol io paralyzed my l e g s h i p down. Now I am 28 years old. I wish t o c o l l e c t stamps of games and spo r t s , medical, hea l t h end cha r i t y i ssues , and a general co l l ec t i on and I would l i k e t o hear from o the r stamp col leotors .

T.N.N. NAMBISAN, Post. Rla t t iyur , Via) B.P. Angsdi, Kerals S t a t e , India (ED: See Bul le t in Board r e In t e rna t i ona l Stamp Coupons)

a. DImR I N INDIA HAS STAMPS I thought of sending stsmps from I n d i s and o ther count-

r i e s f o r your respo co l l ec to r s . I f they w i l l l e t me know what they want, whether advanced and more rare ones,or i f they would a l s o l l k e the ordinery ones, I can make up pack ets....and I s h a l l see i f I can f i nd young persons here who

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would l l k e t o be "pen friends." KAMALA V. BIMBKAR, 0111, Edi tor , The Journal of Rehabili- t a t i on in Asia, The Amerind, 15th Road,Kher, Bombay 52 .. CAR ADAPTATIONS Our car i s a 1958 Rambler s t a t i o n wagon t h a t has the seat

an the r i g h t removed, allowing sn ambulance c o t t o r i d e dth the foot end agains t the dash..We took an o ld ambulance c o t and placed s cyl inder off en hydraulic bumper jack under it i n such a manner t h a t i t f l exes the knees f i r s t , and then l i f t s the head and shoulders.

ARNOLD BRLE, San Jose, Arizona

The motor car (a Ford) had the passenger s e a t t&en ou t and B matt1.8~8 i s ~ p r e a d i n i t s place. This enables my wife t o s i t m the f l o o r of the car, with her l e g s outs t re tched, while the rear s ea t serves ss the support of h e r back.

MR. MARKIEWICZ, 38 Lensdome Crescent, London W 11, Eng.

7 CON,,""EO

T H E M A I L B O X .-

a s LCOD NEWS FUR mn 15 T n l b year we wrote t o the Sta te Office of Internal Reven-

ue end found that , i n addition t o deduction of doctor b i l l s and b i l l s f o r medidin , we can a l so deduct tha t portion of our monthly e l e c t r i c b i l l t ha t is used f o r the operation of my equipment. We a l so can deduct the cost of my specia l bus and generator because tha t i a being used primsrily t o t r a n s port me to and from the hospltsl , and other short t r i p s we couldn't otherwise make.

H b T i DAHLAEIM, Minneapolis, Minnesota .. HAF'F2 BIRTADAY, JORGIW! You ask me i f I h o w Heins Taclanan....Pes, f o r over one

year I wea in the same room with him...Since I unfortunate- l y had t o take a cold,I hed t o re turn agsin t o the Respira- tory Center i n Altona...... Now, I landed again i n the same room and a l l t h i s on my 21at birthday. It was honestly no happy surprise. Meanwhile, I am again well and prepared for a l l fun (jokes).

JrmGEN ERBSLEBEN, Altoner Wankenhaus, Hemburg-Altona, Allee 164, Western Germany .. RBSPO STORB FEATORES MOUTHSTICK ARTISTS One of the ideas we received from your magazine wss hand-

l i n g greeting cards in our store which were designed by the mouthstick a r t i s t s . We answered two ads. We made s poster, using your "cover g i r l , " t o i l l u s t r a t e how a mouthstick ar- t i a t s e t s up f o r the job, and aleo used the page i l lu s t r a t - ing the d i f f e ren t t y p s of mouthstioks. It has caused a great deal of comment and we have sold hundreds of cards.

808 ROSE, 109 N. Water St., Silverton, Oregon .. A BOOSm IN CANADA Thank you very much for your excel lent encouragement re-

8

gular ly provided t o so many respira tory pat ients , and those who a r e in regular contact with them. I know, from my o m observation i n the Univereity Hospitals here i n Edmonton, tha t a l l polio victims enjoy reading it.

JOHN P.v.H. VAN SO-, Exec. D i r . Rehab. Ssrv. Alberta Council for Crippled Children and Adults, Edmonton, Can.

W C H E OUR NEW FRSXCH AMBASSllDOR It i s with plessure tha t I present t o you, on behalf of

a l l my French poli-respiratory comrades and especia l ly those a t t h i s hospital , my bes t wishes f o r 1961.

JACQUES FOURNW, L I1 R, Hopital R . Poincare, Garches, S & 0, France .. A PRNATE CLUB? Thia elmost "private club" atmosphere, mentioned by Ann

Adams a few months ago,that we readers bathe i n seems t o be the log ica l outcome of l iv ing with polio. But, f a r once, exclusiveness i s paying off with our l i t t l e olearing house of good w i l l - TjG.

PAUL HIBBARD, 6 Oakland Lane, Inman, South Carolina (ED: Peul i s our new French correspondent and t r a n a e t o r ) .. 00 LA LA Pleese...DONIT .... send me any names t o write to. I ' m now

s t a r t i n g on my M.A. and sha l l be too busy. Several months ago, I had my name inserted i n the Rench pol io magazine, "LIArchipl ," and before I h e w what had happened,more than a dozen Frenchmen and one French g i r l had written t o me.

A N I J. BURNES, 104 Haekenssek St., Wood-Ridge, New Jersey .. EDITORIAL MOP In the a r t i c l e about my a sp i ra to r (Indian Summer, 1960).

you edited the f a c t tha t its small built-in charger would recharge the battery while the aspira tor i s i n use.

CHbRLES THEIS, Salisbury, Maryland

.. COLLFGE ON wnEE3.s I f ind tha t there are very few colleges which sre actual-

l y s e t up for wheelohair aoconrmodations. The University of I l l i n o i s i s the only college vhich has e concentrated pro- gram v i th ramps t o a l l buildings, plus elevators.

CECILE WSH, Greenville, Ohio (ED: We'd l i k e t o hear from Readers about more colleges) .. WOULUBE FROG B R S A m I N ARGENTINA I am 14 years old. I have a high school education. Po-

l i o i n 1955. 1 l i v e with my family. I use respira t ion a t night and the rocking bed during the day. When I si t in my wheel chair, I ps int , play games and m&e p e n s . I hope t o ge t q lawyer degree. I wish t o learn frog breathing.

MARTINIANA RNTUNINI, Cabello 3791, 2 Piso, D.I. Buenos Aires, Republioa Argentina .. MORE ABOUT FRhi BRGATHING I ins t ruc t senior student nurses i n the nursing osre of

p l i o m y e l i t i s pat ients , so f ind your magazine very helpful i n explaining glossopharpgeal breathing t o them. MRS. K. A. DIEIRICH, Vancouver Gen. Hosp., B.C., Canada

I em able to frog-breathe, but find it impracticable due to unpreventsble leakage from my tracheotomy. Do you know of any one s imilar who has managed t o get over t h i s problem of leakage. I use posi t ive pressure i n the trach.

JOHN A GUDGEON, 26 East Green, Blackwater, Camberley, Surrey, h g l s n d

I had t r i e d t o learn t o f rog breathe. I 'd even aeen mo- v i e s showing how t o master it. One night l e s t August every one had gone to s rodeo, and I took the TjG (spring, 1960). v i th the determination I was going t o learn. I folloued the a r t i c l e ~ t e p by s t ep several times and f i n a l l y I had it.

LOUISE GOFF, Box 1517, S.S.S., Springfield, Missouri

9

T H E M A I L B O X

HORIZONTAL CLAIMS TU FAhX To say tha t any of us has any claim to fame in the hori-

aonts l vmld, necess i ta tes B b i t of imsginatian..I think i t is remarkable that my family i s in tac t , e l l a t home, under the same roof, working together.

CARL WGL!IST, Bergen, New York

I contracted polio the day we vere married,so we made the adjustments to marriage and polio a t the same time.

LUGENI BAXTER, Columbus, Ohio

I u s s Honorary lklephone "pueen f o r a Day" in July, 1958, and I received 3 dozen picture frames, plus many l e t t e r a . Last year we had 1066 v i s i to r s , which may not e n t i t l e us t o any claim to fame, but l e f t u s very few d u l l moments.

MWA JOHNSTUN, Los Angeles, California .. HORIZONTAL OR VERTICAL TJO? l l le new format i s ra ther not t o my li!dng and I have been

trying to f i e r e out i t s reason. Maybe it l i e s open be t t e r for reading s t i cks ( t h i s i t does) but for t rping t o turn by hand, i t doesn't work well.

JUANITA PTJSATERI, W e e Rivers, California

Easy t o read with mouthstick. LAMAR KISRLAR JR., Webater Groves, Missouri

Di f f i cu l t t o turn the p g e s with a mouthstick. LOU MORRIS, Jackson, Michigan

Your l a t e s t issue was the most a t t r ac t ive e d i t o r i a l lay- out I haw seen i n quite some time.

GEORGE C. BFCKMANN J R . , Administrator of Medical Operations, Warm Springs, Georgia

EO*,,*"ED

T H E M A I L B O X

I* 7.B LEGISLATION MAIL BOX

TjC readers a r e making many suggestions for legis la- t ion, both Sta te and Federal, t o achieve our Maximum Peoplepower and t o solve our c r i t i c a l problems. The following excerpts represent the hundreds of l e t t e r s we are receiving: . Because I was s quadriplegic veteran,tke VB paid SlO,MX1

towards building me s home. This was 11 years ago. Since then, I hsve been earning my l iv ing end paying taxes. I f I hsd stayed i n a hospi ta l a t $20 a day, it would hsve coat the VA Qg1,OW - JMF' . There i s nothing i n the Federal Housing 4.ct t o lend a hand t o the t o t a l l y disabled - HTS . The t o t a l l y dissbled are en t i t l ed t o the same exemption as the blind, vhioh i s 51200 per person, and the same break on posta l regulations and t r ave l - VC

The t o t a l l y disabled would fu r the r the i r education, end become self-supporting with ~cho la r sh ips and State and Fed- e r a l aid - I.C4cG

I f e e l tha t d i r e c t f inancia l a id i s not what i s needed or wanted. I would much prefer to earn money - RW

me government should grant an increased deduction f a r s s l a ry of help. I f we are to compete with ablebodied people, it i s necessary t o h i r e help - BMcC

Household help for t o t a l l y disabled women(espeeially for those with s m a l l children) should be deduotible - NJP

W e can ' t afford t o buy or meintain r e sp i re to ry equipment Some agency should take over where the National Foundation leaves off - ES . We need help on respire tory equipment, s imilar t o the "Talking Book" Machines f o r the blind, which the govermsnt gives on an indef ini te loan basis and maintains - En

In the back of my mind is always the f e a r t h a t something w i l l happen to my wife, on whom I depend f o r my eare - EM

It i s increasingly harder f o r our parsnta t o cars f o r a s they grow older - JS

NF's sudden withdrawal of support f o r paying home eare was catastrophic f o r some of us. We need emergency State or Federal aid to help us through t h i s c r i s i s - SS .. KNOW YOUR GO-T ACLNCIES

The disabled person owes i t t o himself, if no t t o those around him, t o fu l ly acquaint himself with the government agencies, the rehab centers with t h e i r highly trained spe- c i a l i s t s and the organizations and publications which help so much. Then, he should a l so be continually seeking out l e s s apparent sources, especia l ly contact with others f o r interohange of ideas and information.

LARRY ABBOTT, Almeria, Nebraska (ED: Send your name and address to: Supt. of Documents, Govt. Pr int ing Office, Washington 25, D.C. f o r IREE Bi- weekly, "Selected U.S. Government Publications".

Check with your loca l Public Welfsre Office f o r d e t a i l s about the Aid to Dieabled Adults (if over 18) which may be avsi lable t o you i n your State.

Every State has Vocational Rehabili tation f o r the disabled. Check with your l o c a l Division of Vocational Rehabili tation f o r counseling, t ra ining and job f indingJ

1 0

"In perhapa no o t h e r f t e l d o f o e d i - - . .. -

om1 Dodesror i s .ecbsnlc.L .as1s tmee 7~~

of such keystooe i m m r t m o e sa i t l a

i n r e h s b l l l t a f t o n of t h e o b ~ s l e s l l ~ . ~r r

h a n a i c s . ~ e d . one l e v e r . even one I - ~ - , r r I

gsdeet. one device . mar be worth one

thoussnd d o l l s r s , tan tboussod t r e s t - ! ? ' :\ .."f. or aoe hundred thousand .ords."

Howard A. Rusk, M.D.

A ramp should be designed from the po in t s of view both o f appearance end safe ty . For an outdoor ramp: plan a gen t l e s l o p f o r easy nsneuverabi l i ty v i t h c ru t ch or wheelohair - n o t l e s s then 7 f e e t i n l e n e t h fo r each foo t r i s e i s a eood work- - i ng rule. Thus, i f the door i s 2& f e e t from t h e ground. t he ~ l v o o n PuTFoRM a lowrnro inlo p-sition by

ramp should be $times 7 , or 17& f e e t in length. -

rops L ronnw, hr.d 06 ~ i l h P . C ~ ,,.... P I.,. perm i, . lord on p..rh ~ h * " ..mp i. ".t bring

That would be the minimuo. Actually, i t w i l l be much e a s i e r t o negot ia te i f 1 0 f e e t of l eng th i s allowed f o r every f oo t o f -.-AuL'-. height. This gen t l e r s l o p makes ascending l e s s s t renuous and FT - . provides g r ea t e r s a f e ty i n descending.

For be s t sur face t r s c t i o n , f l o o r boards should be l a i d cross , wise and toe c l e a t s placed along the center. Rs a f u r t h e r in- surance aga in s t s l i p s , spr inkle the ramp v i t h c lean f i n e send while it is f r e s h l y painted or, before l ay ing t he c l e a t s , co- ver i t with black sand-surfsced roof ing paper.

The cu t s s t r i g h t appeared i n POPI%IIR MECHANICS, February, 1961, and i l l u s t r a t e an unobtrusive and workable ramp.

PORTABLE RAMPS: See TjG, Spring 1960, Supplement, Page 5.

11

- ~

. . ., - \ . * .. - ROLLING EASEL - FOOT SUSPEND%

I '-_ -7. i by P ie t e r bloleveld

P o r t r a i t p i n t i n g was my profes- .- . , ' , s ion before pol io i n 1956. Since my b i 1 3 years in the hosp i t a l and one year " F a t home, I heve designed devices t o ? pa in t again with what i s l e f t in my

legs . My e a s e l moves with rubber

1'' : wheels on wooden racks. My s l i ng fo r - the foot i s made of en old i ron bed- - *- stead, springs, cords, and wooden ? blacks. I am sorry my wife and I cannot speak or v r i t e English,but we

* l i k e to correspond. (Netscherstrasl , -5% 81, The Hague, Holland).

, KYDRAULIC LIFT EASFL

- * - . F.,.T7 h by patty Knupp

Use a s t re tched, mounted canvas. Screw two hooks i n t o the upper boerd. Wrap rubberbands around the crossbar of the l i f t end i n s e r t the hooks. I canvas board can be held by clothes- p ins and watercolor paper attached t o en old mounted canvas.

My nurse-aide r i g 8 up my s l ings , tapes the brush t o my l e f t f inger8 (B.P. was right-handed), hangs can- vas from the l i f t , and moves i t oc- cas ional ly t o extend my range. I stroke with l i t t l e swings of my arm. (2010 Ida Lane, Newton, Kansas).

1 2

VW MICRCBUS ADAPTATIONS by Robert Reynolds

Ramp made of 2 s t e e l channels 1" x 2" x 3' long. S t ee l p ins velded onto ends f i t i n t o holes d r i l l e d i n doorway. S l o t s cu t in f l o o r anchor cha i r and lover it. Middle s e a t removed. Back sea t turned along s ide . (72@A Indiana Ave.,Chsrleston, W.Va.)

Physically Handicapped Cloistered

AMEN... ALLEL.UIA...

"1 English February day of snow and y e t of snow- drops, end the close, candle-heavy atmosphere of a

Pa r i s Church-crypt - the connection? One of the most outstanding women of o u r time, and her story i s one essent ia l ly of our time too.

I t was Holy Week i n 1930, and e young Franc-Polish woman knel t with three cornpenions i n the Church crypt before the Rbbe'Gauoheron. He was reeeivine t h e i r r e l i e ious vows and thev were a l l s t a r t i n e out on an ad- venture i h i e h i s as exci t ing now as thkn.

- What other age before ours, could have accepted a Congregation of nuns

who ere a l l physically handicapped and of ten complete invalids? It was Suzanne Wrotnowska's oonviotion t h a t women whose heal th would have pre- vented the i r entering any of the estsblished re l ig ious orders,should form the i r oun Congregation. Their aim was t o be twofold: they vovld o f fe r the i r weakness and suffering t o God jus t as the healthy o f fe r the i r s t re- ngth and v i t a l i t y . And they would work t o help others who are weak end Buffering, thus turning apparent uselessness t o abundant f rui t fulness . Suzanne l e f t home with 8/ in her pocket. As Sare Marie des Douleurs,

she continued the same t radi t ion. But the response t o her conviction uea such tha t i t was proved t o be well founded: when, a f t e r apparently insu- perable d i f f i cu l t i e s , the f i r s t Priory was opened, enquiries came from a l l pa r t s of the world.

The young women who came t o join the f i r s t three compnions, did not find a pseudo nursing home i n which to compare the i r ailments: no S i s t e r i s p r m i t t e d t o mention her health except t o the Prioress and the Doctor. Some are bl ind or deaf, many are paralyzed and others have no arms or am- putated legs . It does not matter: often, the most handicapped i s spir i t - ua l ly the strongest, and physically, each can contribute something t o the communal l i f e t h a t i s the basis of the i r ru le of l i f e .

u

Nuns by b i g i d Boardman Lane End 99 G. Bonehem Road Warminster, Wiltshire England

I,, I....L. h g l e n d , there are dispensaries f o r the poor, a guest house, poultry farm, a pr int ing press, and cateohism classes are held for children and days of prayer and quie t f o r the i r p r e n t s . I n Rmerloa, there i s a research oentre for t racing the ea r ly symptoms of cancer. (Sse cuts, l e f t ) .

So we cover the years between 1930 end 1950, when Rams approved the Congregation and it became formally recognized. And so onwards, always remembering tha t MBre Marie i s herself crippled and en invalid, u n t i l we come t o tha t February day two years ago when she stayed with my family while es tabl ishing a Priory in England.

Her v i s i t sparkled with her w i t and humour, as she to ld us ahout her war-time experiences during the occupation - exci t ing enough t o merit s book i n themselves.

Now there are t en m s a t St. John's Priory, end from the f i r s t , the loca l people showed r e a l generosity and enthusiasm, supporting them a l l through the f i r s t c h i l l weeks i n a strange country. This i s s l k y s the way - denominations do not matter, and everyone recognizes the courage enh ~ p i r i t of the "sick nuns."

There i s s lay association cal led the "Riends of the Siek"vhich anyone interes ted esn join. They do much t o make pract ical problems eas ie r for the S i s t e r s , but i n the P r io r i e s the nuns a re self-supporting and they do e l l the work themselves.

Prayer i s the s t rongest support of e l l , and the Unim of the Sick is a s p i r i t u a l a s ~ o ~ i a t i o n : and 8 stmehouse t o which anyone who i s hand icap ped can contribute - and, I need not add, draw upon too. The band between the S i s t e r s and t h e i r fellow-sufferers i n "the World" i s one which has - - - - - - - -

demonstrated t h e i r vocation very clearly. Space does not allow for a l l the other d e t a i l s one wants t o add. 8ut

anyone can write t o the Prioress a t RCGllUll M M D I PRIORY, DEVON, FZNNSYI, VANIA and I am sure t h a t everyone would find encouragement and help - de- l i g h t f u l l y mingled with sound ssnae and good humour - i n reading M'ere Marie's book, "Joy ht of Sorrow." It can be obtained from the Priory.

When M'ere Merie landed in New York in 1954, she had 5 d o l l a r s in her pocket. The following year, Regina Mundi was opened, given and furnished by a q s t e r i o u s band of those benefactors who p o p l e her s to ry and the story of her Congregation - the "S i s t e r s of Jesus Crucified." Their motto i s the two words a t the heed of t h i s description - "Amen"

(so be i t ) ..." Alleluia" (the praise of God). 0..

15

LEARNIYG arremlns lechntnczr

R E S P O S S T A T I O N W A G O N u

by ~ r s . Ceci l Hay h / 162 Mink m i v e Ssn Antonio 1

k Texas

T r e ~ e l i s B femily a f f a i r with us , , thanks t o the specie1 r e sp i r a to ry equipment whlch my husband has devised. Ceci l is s superintendent of Bap t i s t missicns

and a mechanical u i z s rd fo r our daughter, Susan. Susan is 1 3 years old and has had po l io s ince she was &. Her brother, Lamy, i s 11. Together, i n our s t a t i o n wagon and t r a i l e r , ue have a l l had some wonderful adventures.

In the spr ing of 1955, a group of Lubbook business men and f r i e n d s gave u s e new Ford s t s t i o n wagon. Ceci l cu t m t the center past , and a t tached it t o the resr door, which he rehinged. He removed half the middle s e a t s ec t i on and e l l of the f r o n t s e a t , rep lac ing i t with s s ingle s ea t . He i n s t a l l e d a pletform, f o r smooth r i d i n g surface, with s t r a p s t o anchor the cha i r or the tank base.

Then he b u i l t a t r a i l e r of shee t metal t o match the car. It has doors on both s ide s for g r ea t e r convenience. It includes compartments fo r each piece of our t r a v e l l i n g r e sp i r a to ry equipment.

18

The l a rge photograph above shows a l l our t r a v e l equipment. s e t the bed sec t ion of the chai r on a small observet iani ra in Le f t t o r i g h t : the r ea r of the t r a i l e r c a r r i e s the "Tiny" (ca l led the "Dead Horse Specia l" ) and took a t h i r t y minute (upper) end "Rambler" tanks; middle s ec t i on c a r r i e s Huxley tour ins ide the gold mine. r e s p i r a t o r and c lo thes c lo se t ; f r o n t sec t ion c a r r i e a l a rge R t Chattanooga, Tennessee, we explored Ruby F a l l s Cave. wheel base of Multi-purpose rocking chair-bed (TjG, Spring, Because it i s e f a i r l y l e v e l tunnel, back i n t o the h e s r t of 19601, gasoline A.C. generator, ba th chai r , su i tcases . Large the mountain, we f e l t we could take Susan in . A t one pleoe, wheel base of the Multi-purpose i s shorn i n s ide the car,with the t r a i l became too narrow fo r the l a rge wheel base of her the small base end the home-made D.C. r eep i r a to r u n i t an the chai r , so we parked it, and ca r r i ed her the rest of the way pound beside. We e l s o have an ex t r a 1 2 v o l t ba t t e ry and a in her bed section. In the mountains of New Mexico, we car- D.C. a ~ p i r s t o r . r i e d her up e Ranger Fire Lookout ( a l t i t ude : 12,MX) f e e t ) .

The Tiny tank i s too small f o r s leeping overnight. But it Some of the other p leees we have taken her were:the South- makes poss ib le one-day t r i p s when we can leave the t r a i l e r ern Bap t i s t Convention i n Miami, Florida; San Angelo, Texae; behind. It r i d e s on the small base (see l i t t l e c u t above). the Great Smoky Mountsins National Perk; Colorado Springs; It i s designed so t h a t the c o l l a r is "put m" not "through." G l m i e t a , New Mexico; Yellowstone National Park; Mess Verde Both Tiny and Rambler operate on the Huxley f o r A.C. or the National Perk; the Rrehes National Monument; S a l t Lake C i t y CBT u n i t f o r D.C. and the Grend Tetons. Susan's brea th ing schedule goes r i g h t on during hour a f t e r Since q husband has b u i l t almost everything we hwe, he

hour of dr iv ing . (She uses a i d 23 hours a day). While trs- can r e p a i r any of it a t a f i l l i n g s t a t i o n or garage. He even ve l l i ng , she a l t e r n a t e s us ing the ches t s h e l l and the Tiny c a r r i e s a welding rod along i n Ease some of t h e aluminum s- tank, both on the D.C. un i t . quipment breaks. so he can borrow a torch and do the jobhim-

One day we went up P ike ' s Peak. Another day, we drove a- s e l f . I f any TjG readers are i n t e r e s t ed in bui ld ing a v t h i n g r o d Pike ' s Peak t o the l i t t l e t o m of Cripple Creek. We s imi lar , we vill aupply complete d e t a i l s , plans, e te .

19 CON~~MUEO

by Tom Rowleg, National Vice-Chairman I n f a n t i l e Pa ra ly s i s Fellowship London, W.C.1, England

H ow would l i k e t o spend a holiday by the sea in two beau t i fu l caravans ( t r a i l e r s ) e spec i a l l y

COVW: avai lable fo r you and your family? This i s not a Bishop Robin and dream. The caravans are now a r e a l i t y f o r English b. Sendiford respos. One i s l a rge and roomy f o r you and your ~ l c o m a equipment and your at tendant. It i s f u l l y e q u i p Heather Ruf f s l l , ped t o handle any r e sp i r a to ry e q u i p e n t t h a t you with her f a t h e r , would need. There i s a T V , ramp, telephone and a 8rigediar ~ l ~ , , d ~ l l , well-equippsd kitchen, as wel l as plenty of room t o the Caravan f o r guests. Adjoining, i s s seoond, smaller cara-

van i n which your family can sleep.

20

The caravans b s c m a r e a l i t y through the zealoua l eade r sh ip of the I n f a n t i l e Para lys is Fellowship. Dr. H. 8. Ssndiford, of the nearby Portsmouth Infec t ious Diseases Hospital had the a r i - g ina l idea. He planned the construction and apparatus and work- ed c lo se ly with the Fellowship i n making the scheme possible.

The esra~ans' permanent address i s the lovely s e t t i n g of the Langstone Harbour, the Por tsdom Hills and the River Solent. They are "moored" t he re because of the spec i a l power l i n e s and because of t h e i r nearness t o the Portsmouth Hospital should m y r e sp i r a to ry emergency a r i s e .

From the outside, the l a r g e r one i s simply a roomy,attractive caravan b u t i n s ide , i t has e number of unique end i n t e r e s t i n g f ea tu re s which make it, i n f a c t , the only caravan of i ts kind i n the world. Entering the vide f r o n t door by ramp, the first impression i s of unusuel spaciousness, f o r from the l e f t of the door up t o the kitohen p a r t i t i o n i s room fo r a full siza bed which fo ld s up i n t o the pa r t i t i on . On the r i g h t of the door, a- cross the end of the caravan, is a divan-bad f o r e second oc- p n t . On the f a r us11 from the kitchen opening, i s e long roomy curtained of f wardrobe. Host importent, i t conta ins a pumping machine capable of supplying a i r t o any typ of breathing mach- ine . Yet, so spacious is t h i s room t h a t i t can take a f u l l s i z e i r on lung. A t the o ther end, with e separa te entrance, i s a ue l l - f i t t ed , compact kitchen, behind which is a bedroom w i t h tuc-tiered s ing l e beds.

The o f f i c i a l opening of the Lsntern Caravans took place on May 14, 1960 and i t was attended by a l a rge crowd of i n t e r e s t ed specta tors , The proceedings were opened by Dr. Erie Johnson, National Chairman of the I.P.F., Right R e ~ s r e n d 0 . P. Robin, Assistant Bishop of Portsmouth,Dr. MacLachlan and Dr. Sandiford of the Portsmouth Hospital.

The caravans were used every week l a s t year from the o p n i n g u n t i l l a t e i n the F e l l by d i f f e r e n t respos and t h e i r fami l ies . They sunned and relaxed, end watched t h e i r ohi ldren play by the sea, and enjoyed the l ove ly harbour. Now, they are s i s l n g up f o ~ another respo holiday t h i s yesr .

21

Eeather Ruffell (see c u t above) was the f i r s t o f f i c i a l v i s i t o r and the honored y e s t a t the opening ceremonies. By a remarkable coinc idsnce , i t was a l s o Heather's b i r th- day. The Portsmouth Branch of the I.P.F. presented her with s most d e l i g h t f u l bir thday cake, i n the shape of an exact r e p l i c a of the caravan, even t o t h e T.V. a e r i a l .

- Condensed from I.P.F. BULLETIN, June, 1960 ED Note: The I.P.F. has graciously extended an invi ta -

t i o n t o any r e sp i r a to ry from the United S t a t e s m Canada who may be i n Europe t o spend a week. Address gour in- quiry about o p n da t e s to: Dr. H. B. Sendiford, 3 Boun- dary Way, Cosham, Portsmouth, England.

coM.cM"em

by Vera Larson 775 Leonard St. N.E. Grand Rapids 5, Michigan

W e vere never able t o spend a vacation awsy from home u n t i l two years ago. Then we bought a small hmse t r a i l e r and my

husband, Harry, b u i l t a plywood resp i ra to r i n it. The " t d " par t i s made of plywood and e cover on the tank

l i f t s up r s the r than having the section s l ide out. He got an old Amrican iron lung that a hospi ts l vsnted t o dispose of and the motor and drive assembly came from that. A Drin*er bellows flvnishes the a i r pressure. (See cut r i g h t ) . We take along our generetor i n case of power fa i lure . We have used the t r a i l e r two summers now, and I cannot be- gin t o t e l l you the enjoyment it has given us. Most of our ips are weekends spent with my s i s t e r and her familym

Lake Michigsn, about 50 mi les awsy. They l ive r i g h t on the Lake, 80 w boys (Tom, 13, and Dick, 12) can enjoy the water.

There i a only room in the t r a i l e r for Harry and m e t o sleep. So, Mother end the boy8 s leep i n the house wherever ua are v i s i t ing . Once each summer,we have spent a week with q! brother and h i s family, 4W miles away, a t t he i r cabin in the woods, near Lake S u p r i o r . (See cut r ight) .

The first night we spent i n the woods, I wes jus t f a l l i n g as leep when I f e l t something bumping the outside of the t r a i l e r . Our dog s t a r t ed t o whimper (he always sleeps with us i n the t r a i l e r ) so we knew something waa out there. We could hear e @awing sound underneath us. Barry atampad on the floor and our "monstern ran away. We found out l a t e r it had been s porcupine oheving on the wooden pa r t s of the t r a i l e r . After tha t night nothing bothered us.

b r i n g the day, I t ravel up f ron t i n our 1960 Rambler,us- ing the recl in ing seat. I have a cheat respira tor tha t can be plugged in to the c igaret te l igh te r of the oar i f needed.

22

.. COLLGGE ON UlimLs I find t h a t there are very feu colleges which are actual-

l y s e t up f o r wheelchair acoommodstions. The University of Tllinois i s 'ha nnlv cnlleee which has a concentrated arc- - -- -. . . . . . -.. . -~~-. - gram with ramps t o e l l buildings, plus elevators.

CECILE HLISH, Greenville, Ohio (ED: We'd l i k e t o hear from Readers about more colleges) .. WOULD-BE FRM: BREAT1W I N ARGENTINA I am 14 years old. I have a high school education. Po-

l i o i n 1955. I l i v e with my family. I use respira t ion e t night and the rocking bed during the day. When I sit i n my "heel ohair, I paint, play games and m&e poems. I hope t o get my lawyer degree. I wish t o learn f rog breathing.

MARTINIANA A N T O N I N I , Cebello 3791, 2 Piso, D.I. Busnos Aires, Republics Argentina .. MORE ABOUT FROG BREATHING I ins t ruc t senior student nurses in the nursing care of

poliomyelit is pat ients , so f ind your magazine very helpful i n explaining glossopharyngeal breathing t o them.

MRS. K. A. DIEIRICH, Vancouver Gen. Hosp., B.C., Canada

I am able to frog-breathe, but find it impracticable due t o unpreventsble leakage from my tracheotomy. Do you know of any one s imilar who has managed t o get over t h i s problem of leakage. I use posi t ive pressure i n the traoh.

JOHN A GUDGEON, 26 Ess t Green, Blackwater, Camberley, Surrey, h g l a n d

I had t r i e d t o learn t o frog breathe. I ' d even seen mc- v i e s shoving how t o master it. One night l a s t August every one had gone t o a rodeo, and I took the TjG (Spring, 1960), u i t h the determination I was going t o learn. I followed the a r t i c l e s t e p by s t ep severel times and f i n a l l y I had it.

LOUISE GOFF, Box 1517, S.S.S., Springfield, Missouri

T H E M A I L B O X .. HORIZOBTAL CLALIHS m FAHB To say t h a t any of us has sny clsim to fame i n the hori-

zontal world, necess i ta tes s b i t of imsginatim..I think i t is remarkable tha t my family i s in tac t , a l l a t home, under the same roof, working together.

CARL UGUIST, Bergen, New York

I contracted polio the day ve were married,so we made the adjustments t o marriage and polio a t the same time.

LUGDIE BAXTER, Columbus, Ohio

I was Honorary Telephme "Queen f o r a Day" in July , 1958, and I reoeivsd 3 dozen pic ture frames, p lus many l e t t e r s . Last year we had 1066 v i s i t o r s , which may not e n t i t l e us t o any cleim t o fame, but l e f t u s very few d u l l moments.

MYRA JOHNSTON, Los Angeles, California .. HORIZONTAL OR VWTICAL TJG? The new format is ra ther not to my l ik ing and I have been

trying t o f i e r e out i t s reasm. Maybe it l i e s open be t t e r for reading s t i c k s ( t h i s i t does) but f o r t ry ing t o turn by hand, it doesn't work well.

JUANITA PIJSATERI, Three Rivers, Csl i fornie

Easy t o read with mouthstick. LAMAR KISHLAR JR., Webster Groves, Missouri

Diff icul t t o turn the o a w s u i t h a mouthstick. LOU MORRIS, Jackson, ~ i c k g a n

Your l a t e s t issue was the most a t t r ac t ive e d i t o r i a l lsy- out I have seen in quite some time.

GEORGE C. BECKMANN JR., Administrator of Medical Operations, Warm Springs, Georgia

EOY"*"ED

- . We can ' t afford t o buv or msintein resnira torv eou i~ment

T j G readers are making many suggestions f o r l eg i s l s - t ion, both Sta te and Federal, t o achieve our Maximum Peoplepower end t o solve our c r i t i c a l problems. The following excerpts represent the hundreds of l e t t e r s we are reoeiving: . Beoause I was a quadriplegic veteran,the VA paid 810,OW

towards building me a home. This was 11 years ago. Since then, I have been eerning my l i v ing and paying taxes. I f I had staged i n a hospi ts l a t $20 a day, it would have cost the VA $81,000 - JMP . There i s nothing in the Federal Housing Act t o lend a hand t o the t o t a l l y disabled - W S

The t o t a l l y disabled are en t i t l ed t o the same exemption as the blind, which i s $1200 per person, and the same break on ps ts l regulations end t r ave l - VC

The t o t a l l y disabled would fu r the r the i r educetion, end become sslf-supporting with soholarshipe snd S t s t e and Fed- e r a l aid - ESkG

I f e e l tha t d i r e c t f inancia l a id i s not what is needed or wanted. I would much prefer t o earn money - RW

The government should grant an increased deduction f o r s s l s r y of help. I f we are to compete with sblebodied people, i t i s necessary t o h i r e help - BMcC . Household help f o r t o t a l l y disabled uomen(especiaLly f o r those v i t h small children) should be deductible - NJP

. We need help on respira tory equipment, s imilar t o the "Talking Book" Machines for the blind, which the government gives on an indef ini te loan basis and maintains - EH . In the back of my mind i s always the f e a r t h a t something w i l l happen t o my wife, on whom I depend f o r my care - BM

It i s increasingly harder f o r our parents t o care f o r us as they grow older - JS

NF's sudden withdrawal of support f o r paying home care was catastrophic f o r some bf us. We need emergency Sta te or Federal aid t o help us through t h i s c r i s i s - SS .. KNOW YOUR COVERN&V A G Q U C W

The disabled person owes i t t o himself, i f not t o those aroundhim, t a f u l l y acquaint himself with the government agenoies, the rehab centers with t h e i r highly trained spe- c i a l i s t s and the organizations end publications which help so much. Then, he should a l so be continually seeking out l e s s apparent sources, especis l ly contact with others f a r interchange of ideas end information.

LILRRY IIBBOTT, blmeria, Nebraska (ED: Send your name and address to: Supt. of Documents, Govt. Pr int ing Offioe, Ueshington 25, O.C. f o r IREE Bi- weekly, "Seleoted U.S. Government Publications".

Check with your l o c s l Rtblic Welfsre Office f o r d e t a i l s about the Aid t o Disabled lldults (if over 18) which may be available t o you i n your State.

Every Sts te has Vocational Rehabili tation f o r the disabled. Check with your l o c a l Division of Vocational Rehebili tation fo r counseling, t ra ining and job f indingJ

10

NAIROBI TU MOMBASA: 3W miles e a s t 5000 f e e t dom

by Ian Bompas, Box 205, Infect ious Diseases Hasp., Nairobi, Kenya Colony, Br i t i sh EBst Africa

I l l u a t r s t i o n s mouthsticked by Margaret Anderson, 432 Lafayette Excelsior, Minnesota

L a s t aummer 1 went from Nairobi t o Mow basa by t r a i n and spent a three month

holiday there. The loca l re i lvay kindly f i t t e d me up with my o m carriage and a generating plant f o r my tank.

I had qui te a t r i p . Our railways ere p re t ty old fashioned. After 1% hours of bumping and shaking through the high cool Engl ish- typ countryside, the dry open Athi Plains teeming with game, and the thick thorn shrub of Tsarro, we resch- ed the humid hot coasta l bel t .

This was the r e a l t ropics , plm t rees and everything. Mombass, Kenya's chief Sea port,was a fascinating mixture of the new and the old. It was quite a s igh t t o see aeesn l i n e r s pass old Arab dhows.

I was the only polio pat isnt there and had a f ive room bungalow. It was ra ther lonely a f t e r Nairobi, but i t had its com- pensations -a chance t o paint new scenes, the warm sea (which I vent i n t o daily), end a couple of lovely nurses.

Whet more could e man want? --m n - n r o . ; c ~ ~ su r e e r -WIT-# L O Y L L ~ Y Y ~ ? ~ L S

H O U S E B O A T D by Laurie Berneson

152 N. Hudson Los Angeles 4, California

R ook and r o l l " i s not a l i k e l y term t o associate with a pol io pat ient , but I do jus t tha t during our vacations.

For the past three years, I have spent the summer months a t Catalina Islsnd,Californis, aboard our boat on which I use a rocking bed during the day end Ports-lung st night.

Pr ior t o my polio in 1953, my husband and I spent many years sa i l ing. We took frequent veek-end t r i p s aboard our 45 f t . sloop, LANI. My husband has not only been a- round smell boats a l l h i s l i f e , but he was i n command of two ships while serving in the Coast Guard during World War 11, and h o l d s a Merchant Marine Off icer ' s License.

In 1957, l iv ing a f loa t seemed practicable again, and ue acquired a seagoing houseboat. We named her the DRUMEOlJR or DRUM f o r short. This was the name of a clipper ship awed by w husband's grandfather. Our DEUM is a 52 foot, t w i n screw d iese l motor host. She has a 15 foot beam. Below a f t , are two staterooms with e head end a shower, and e double stateroom f o r guests with a bathtub. Forward

below i s the galley with a stove, large r e f r ige ra to r and freezer. Forward of t h a t are two smell staterooms and lavatory which our Down-Easter one-man crew and our son use. Between the l iv ing quar ters i s the engine room. The upper deck consists of a p i l o t house forward, and s large cabin a f t .

We extended the m i n cabin by four f e e t t o give us a 10' x 16' room. This enabled us t o build a 7' se t tee on the port side of the oabin, and use i t as B M f a r "He' (my husband). Opposite the set tee , on the s f t e r starboard side, we b u i l t in a cabinet. The top v e use f o r serving meals, the r e s t gives us atorege place and a place fo r an automatic heater. We put in a s l id ing glass door with windows on e i the r side e f t . This gave us a very cheerful cabin with windows on three sides.

My rocking bed wes ins t a l l ed on the forward starboard side of the cabin. A cradle was b u i l t outside on the a f t deck t o hold the P~rta-lung. Other polio equipment con-

sists of two Monaghans, two suction machines and a hand resuscita- tor. Ye borrow an ex t ra suction machine and a Honaghan f o r the sum- mer montha f o r emergencies.

A major project was t o install the e l e c t r i c aupply l i n e s t h a t we would need from Cats l ina Islsnd; 800 f e e t ware needed t o reach the exis t ing l i n e s on the is land; 285 f e e t l i e m the bottom of the c- cean. We ins ta l l ed a generator t o supply us with 32 v o l t s d.c. f o r the boat and 110 v o l t s a.e. f o r my equipment.

Aboard ahip, I l i v e an p re t ty mueh the same routine as I do a t home. In the morning, while my nurse makes me presentable, "H" cooks the breakfast. Ae is a good chef. After breakfast, I am l i f t e d from the lung t o the se t tee . The Porta-lung i s then removed from the bed and put in i t s cradle on the deok. Then I sunbathe on the a f t deck, and have a bucket of water poured on me f o r a bath, which I r e a l l y enjoy. Then, I am carried t o the bed and dressed.

Two or three nights e week, we hsve f r iends f o r cooktails before dinner. I see many more p o p l e then I do st home. No one i s i n e mad tea r a t Catalina, and f r iends come over from t h e i r o m boats. The f i r s t Bummer, we had boat house guests every waekend, end t h i s turned out t o be too mueh socia l l i f e f a r me. Since then, I have taken it easy and my two children, Nancy end lee (14 and 12). hsve a l l the overnight guests.

A t night, when I go t o bed, the Porta-lung must be a t r a p p d t o the bed very securely. The prevailing winds are westerly, but when en eas te r ly blows, the cove can become quite choppy. This r o l l i n g alarmed me the first summer, when I was an the rocking bed, but the next year, I was able t o t&e it without qualms.

Aa a rule, we leave the cove on Thursday morning and a r r ive a t our berth in San Pedro st 1 p. Here we take on f resh laundry and supplies of food. R i d a y morning guests or passengers come aboard end we return t o the cove f o r another week. The pest two summers, I have l ived a f loa t 8 weeks without leaving the boat.

The cove, i n which we have our mooring, i e a b e a u t W spot with many kinds of f i s h swimming through its c le s r blue water. We con- s ider t h i s t o be one of the most idea l spots t o be found anywhere. It st i l l amazes me I am a f loa t again.

27

I L

I f ? Market Place $q$ I The MARKET PLACE i s o p n t o RESPIRATORY FQLIOS u. No charge t o 1 "respos" for ads. Send your swaps and wants end classified ads to:

"3; Mickie McCrau, Market Place Editor, Box 149, Chagrin Falls, Ohio. I 1 I

L t 7 TUM SEXTUN 1723 EVanSdalS Toledo 7, Ohio - - - _ - _ - -

hieensad s o l i c i t o r

' ~ u s i n e s s and s o c i a l pr int ing land bonds. Greeting

L-- - - ---- - - - - - - A

I FOR SALE. +t icontrol ler I I perfect condition

Unused. Custpn made I I cost $110. non-prof =t

Sacrifice 580* Shipped I I Independent operation of up I I I t o six appliances ,

I

31st Place, N. W. I Wash. 15, D.C. I

I

I . I micro-=itch, rcmate control I Invented Herb. S. Merril l

1 Controls appliances ineludinq I I rocking bed* $99.50 I I Write Herbert S. Her r i l l I

Dm-Eas t Electronics 1 93 ~ e p o t ~ d . I I Falmouth, Hains I

Charles F. Theis Deer's Head Hospital S a l i s b m , I.iarg.land I

"BuffsJo Bones"

Foam rubber used a t old ~uffalo'i*; acntrr . .. t o support h e e s o r ankles. Coafnrt and design prevent lolee f lop . 2" shor te r model used a t ankles o r elbows. $3. f o r 2 of e i t h e r s i z e in colorful material.

I - - - - - - - - - - - - -

I-crace I I Valley City N.D. I

I 1 EBRN SCHE MONEY S e l l Grace Notes - c h a r c d sketched

I I note paper and greetins I

I testimonials. cards. For fu r the r I Caneron Ems I information write. I 13631 Madsen .. .. _ ....

Kingsbum, El.-l I _ - _ _ - - I I r ene Ridgeway EL25 Luxor (

D m e y , ca1. I - - - - -, I I Wheelchair Wave1 Guide I "Where Turning Wheels Stops'

I ~ i s t i n g s of U.S. motels. I I I restaurants, hotels, I

( anusaments f m wheelchair

I 2h0 Lee Ave. Stroudsbure. A. I

r- - - - ------ sell mouth-stick sketched

MRKE YOUR FCLT .HRPPY U1 I 1 -8- 1 BHLIES SHINED W ~ T U I Write fo r

R E R ~ ~ O L HOE BPRR*! I ~rochures. Seal check o r money order. I , ...

, ~ e o a i d orders sent postpaid a&ere , I

ROBERT B.

~ ~ , , d - % ~ p d Dunlay, T-s &/La 9hl

~yclo-massage u n l t f a r uu - Plugs i n t o l lgh te r Specia l $59.

E lec t r i c eraser bL.9- l r r l V 'I

Charles E. Wan

6*5 crosvenor sand Lake, Niche I- I - - - - - - - - - - -

s e t of 2~ pastcaFds - I I r e ~ r ~ u c t i m ~ of paintincs

by mouth. $1. plus $.lo I postage. A l s o o u o r i g m a I mouth minterl cams lor

col lectors or paintings I I

I for the in teres ted.

I Hiss ~ g l ~ Thmpson Rt. 2 I Bmr 663 Austin L, Texas I

- - - - - - - L - -1

I >BOOKKEEPING AND TAh stnvrbr. 3 1

MARY W. ANGEL

I

S W. R O G E R S I HAVE ~ P U BEEN LOUKINE FOR R TYPIST 2 Manusmipt,legal, etc. Corrections ul I

W'istered representative $addell 61 Reed, I ~ C .

I spellins, grammar, punctuation i f Mutual funds andfinancial planning. I desired. Stenci l t m i n g - typing for I

photo reorduct ion. write f o r more I I detai ls .

hogene Richard I 766 St. JohnsAve. I Lha , Ohio

n7 Liberty S t . L , - - - - - - - - - - - _ I I-

Ave k i a "Wsteriesr ' Rosary.. - 1 Would be glad t o wss on sane ~ ~ a e t i e a l hints, mny interest ing features. 1 givenhim,to other post-polios with questions Available i n black.-white, I

on boo!&eeping and tax work. aqumarine. $2.50 pp. I check m money order - ?lo cash. ,

I willowick, ohio I ~ e c b ~ r i e i e r Jean IPry: I

I 269 College 296 E. 255 1 Wadworth, Ohio Fhclid, Ohio I

I - _ _ _ -- -- - - _ - I I

William Sayers Ooldvater nosp , Ward C12 - Rsm. Unit Welfare Is. 17, N.Y. I

Bonds stocks - - - Lesl ie B. Rosenblatt I ~andicop hid Company 1318 Wes

Lo6 E. Hanlon St. 732 E. 200th St. Cleveland 19, Ohio H i l ~ u k e e , Y i s . h u D ~ ? T NEED fl F6nsDWLTa

Ross Eager 215 N. LOO West cedar c i ty , F a m u s Insurance Oroup

nd your chair 83.

30

I I

I

I I

I I I

I OISTS 1 I

ittleton, cola CAR CC'!TROLS I CLR HOISTS I

I Stop ~ ~ ~ ~ h i ~ g . . ~ / . . F a ~ What You're Looking For I I _ _ - - --- - - _ - - - _ _ - _ _ _ _ _ _ I

*&K* Jan h e h l i n g zi

900 &yce

1203 Sand Beach I ! Bad Axe,Michigan ,

I SpecialDj Aids W9 Locust St. I

I Santa Crur., Cal. -- - - - - - - A I - - - - - - - - - - -- I I GREETING CARDS I I And PAINTING I I Visit or Phone I

I JIMMY RODOLFOS I

60 Eastern *venue I

I Woburo. Mass WElii 3 . 2 2 1 3

L - - - - - - ---- 31

A deluxe ambulance cot mbber ball-bearing wheels, cmple te with foam rubber mattress. Raises t o bedlevel - lowers t o f i t s t a t i o n

Wawn ridinc,Like new. 9150. ,Write

I I Seat-slider, board with t racks , plus a I I sea t with runners .Des i~ed to allow turning I act ion and t r ave l the lenEth of the b o d . I I Q2.50 prepaid wi thin U.S. I I Sa le subject t o t r i a l .

H. G . Van Sant 1 @ F'. 0. Box 389 hh Beach, FI~.

Receive our specia lquotat ionso

~ ~

Q TjG i s e n t i r e l y vo l t i s not supported by any g r sn t , fund or thanks the generous f r iends l i s t e d below foundation. I f you wish t o he lp v i t h e tex-deductible cont r ibut ion , whose cont r ibut ions paid fo r t h i s i ssue . make check to: IRON LUNG FULIOS, I N C . , Box 149, Chagrin F a l l s , Ohio B

Barbers Cory Mrs Maurioe K Stern Suzy Williams Psul C Caravas Iowa North Carolina Carr ie Es ther Hemmil =an Rioker Harry L Doll George Gates

Kentucky North Dakota Pemss lv sn i a Ca l i fo rn i a Marion & Bob Absre Delcie O ' B r y n t l r ~ Nick F Wehner Mrs Russel l L Bowersox Madeline Alveraon Mrs C D Sshner Mr J Crawfard Jscob H B l i t ze r Jr Louisiana Mary Lee Bsrnes Mrs Chsrles E Gearhart

Capt & Mrs B i l l Bsxter Betty Leedom Mrs Roy D Car ter S tee le Burden M r Ralph 0 Dosch Tom Keis ter Mrs E l l a M Cornell . Mr & Mrs W H McCullough Alta E DuBois M- Doris J Coutant Memo E Mil le r Rev & Mrs F Herold E s s e r t Yc & Mrs Bud Dabney Coventry School G i r l Scouts John M Pr ice

C r y ~ t s l F r i ed ly Betty W i l l e t t I n memmy of Dr. W. C. Davis Texas D r & Mrs M L Greiffenberg M i & Fgima C Dobler Jeanne Drske

Mrs P a t r i c i a hugenstein Mrs Robert Edwards fianz E Hofer M r & Mrs Geo H McDonald Jr Mr & Mrs John F Brsmham Mrs Margaret Nicola Hurley Pnonym~us Irene Ridgevay John Goodin Emma R Fax Es t a t e Thetford Benevolent Society

Mrs Cornelia Lightner Emmy Ruud Harry Larson Albert L Hollovsy Mrs Carlton L S h o o k Vince La Mielle Kappa Delta Soror i ty Virginie

S t r a t fo rd College 1s Carol Molnar Don Kol ls r Minnesota Washington Smith Yea Herman Krauosteuber Mrs Barbara Wakerhauser Mrs Glendeen Mathson Elary Louise Hsnssn n

Marion R Wylie Wilson M m Rose Msrquard H W S t epu t i s

vulv. M r & Mrs R H Brady Solon Women's Service Club . Mrs Dale L Goff Mr & Mrs Henry Uogler Wisconsin

Lsmsr Morey Kishlar D r dr Mrs Reich Watterson Jr Eugene W Rulff Virg in ia M t h Connecticut Nebrsska I n memory of Mr E Mrs A T Wood Robert G Vsnde Zsnde

Tensia V Cook Douglss Martin Ohio. Chagrin F a l l s Germany Robert Kelemen New Mexico Mrs AllaIi N Cleaveland D r Axel Donhardt William E Parker Jr W. B. B i m s J r D r & Mrs Robert H F i t t s L t Col Rex H Bleuet t

George R Reed Lou Am Loomis Thomas Q N t o n India D i s t r i c t of Columbia Mr & Mrs B i l l Hutchins D r Ruth M Myers

In memory of Dr Alva D Daughton Ab i l i t i e s , Inc J. S. Laur ie , ~ . D r John K Norton M r s Charles Best Mrs Msriam S Leaper Canada

Margaret Norr i s Mrs Arthur Bisgood Mr & M r s Robert Riegler Elaine Al l i son Harvey G Van San t Mrs Ho l l i s Caswell Betty M t h John PvH Van Soersn

. - Nancy Edwards I n memory of F r d Stanton R L Schultz Georee C Wokmann Jr Edward J Kleni t I n memory of John T. Pitt Mr & Mrs J D W Blyth

! M r s Richard Schnier Mrs Ar thw Winslow Karl Schreiner

VR,M,SD 8 " u .x .a . 32

Jerome S i l Mrs Louis J e r r y Ste l Mrs Els i e Tab" ""&..