Real World Takeaway Strategies for Successful Partnerships
Beyond Privacy: Social Media’s Ethical Responsibility to the Clinical Trial Patient
Inspire Rare Disease Health Communities at a Glance
Closing perception gaps between patients and their caregivers
Inspire Cancer Support Groups--by the numbers
Reaching a Rare Disease Community Eager for Treatment Options
Psoriasis Social Media Trends
Scleroderma Foundation/Inspire Support Community at a Glance
Strategies and Tactics to Leverage Social and Digital Media in Clinical Research
How e-Patients are Learning and Sharing Information about Pre-Approval Therapies
Trialing successful social media strategies in clinical research & development
The promise of patient-initiated research
Experts by Experience--A compilation of patients’ stories
Advancing Quality of Care for Tuberous Sclerosis Complex Patients: A Case Study of Successful Partnership
Lives Turned Upside Down: The Impact of Sarcoidosis
The Pulmonary Fibrosis Foundation/Inspire Support Communities
Neurofibromatosis Social Media Trends -- a Medicine 2.0 Presentation
Designing for search and discovery is crucial: an example from rare disease
Neurofibromatosis Social Media Trends