The Value of Online Communities

Results of a survey on the role of Patient Groups in Research and their priorities for the future

Session 25 antoni_montserrat

Using the internet to search for clinical trial information

Workshop 6 - "BURQOL-RD"

Session 3 yann_le_cam

Workshop 2 - "Presentation of the concept, definitions and terminology"

Workshop 2- "Feedback from the 15 National Conferences on Centres of Expertise"

Workshop 6 - "Case study: Italian Training for MDs,"

FDA Social Media Hearing Part 15 Summary

Workshop 7 - "Brainstorming & Policy Development session: Prevention"

Surveys and polls: The RareConnect.org Experience

Rare disease day 2011 highlights

Workshop 5 - "Feedback from the 15 National Conferences on social aspects"

Workshop 5 - "The Norwegian Model"

Workshop 6 - "Training package on RD for medical students"

Workshop 7 - "Prevention in the Spanish National Plan for Rare Diseases"kshop 7 - Brainstorming & Policy Development session: Prevention

AMWS CINCA

NOMID Alliance

Searching for quality information via pubmed and other sources