Transplant Opportunities to Increase Donor Designation

November 19, 20133:00 PM EST

Upcoming Webinars

Transplant WebinarDecember 10, 2013, 4:00 PM ET*Vaccinations and Infectious Disease Prevention in the Pre, Peri, and Post Transplant *Time changed to 4:00 pm ET

Get Connected WebinarDecember 10, 2013, 2:00 PM ETTop Gear: Emerging Technology in Donor Management•For more information, email hczarda@odt-alliance.org or mhudson@arora.org

Speaker

David FlemingPresident and CEODonate Life America

Embracing the Role of

Transplant Centers in

Promoting Donor Designation

MissionTo drive individuals, organizations and communities

to increase the number of designated organ, eye and tissue donors who save and heal lives.

VisionA nation that embraces organ, eye and tissue

donation as a fundamental human responsibility.

Donors Recovered in the U.S. by Donor Type1988-2011

Based on OPTN data

Donors Recovered in the U.S. by Donor Type2002-2011

Based on OPTN data

U.S. Transplants by Donor Type1988-2011

Based on OPTN data

U.S. Transplants by Donor Type2002-2011

Based on OPTN data

Total Patients Waiting1989-2012

Based on OPTN data

Donate Life VoicesPilot

•Launched March 2011-March 2012•Empower those with the most to gain or lose in the quest for donor designations•Partner with transplant centers to help answer the question “what can I do?”•Supply recipients and patients waiting with tools to educate those around them

Donate Life Voices

Donate Life Voices

•4,000 kits– fact sheet, tips for telling their story and Web banners

•www.donatelifevoices.org– Information about donation– Tools and gear– Join as a Voice

•Posters & table tents•Free Voices t-shirt or hat for those who join•eTalk newsletter for ideas and recognition•“Distributor” orientation

So Who Joined?

•1:7•61% female / 39% male•28% awaiting transplantation (primarily kidney)•23% recipients (primarily kidney and liver)•20% friend/family of patient waiting•19% friend/family of recipient•10% living donors

What did they do?

•September 2012 survey– 60% registered as a donor– Sent emails & notecards– Facebook likes– Bumper stickers & used Donate Life stickers on mail– Wore pin, hat, shirt– Told their story & asked someone to register

Donate Life Voices

Art Thomson, MAAdministratorTransplant CenterDigestive Disease InstituteCleveland Clinic

Donate Life Voice Survey Results

• Likely Participation:– Over 90% of kit recipients said they were likely to use the

resources contained in the kit (e.g., wearing the Donate Life pin, displaying the Donate Life bumper sticker, visiting the web site to register for a gift, etc.).

Donate Life Voices Survey Results

• Kits are effective in encouraging organ donation:– 90% of kit recipients said they has impacted at least one perso

n’s choice to become an organ/tissue donor.

– 75% of non organ donor kit recipients said the kit inspired them to become a donor.

– 80% of kit recipients felt Cleveland Clinic is helping to spread the word about increasing organ donation.

Kits

Brochures

Note Cards

Posters

Table Tents

A Great Idea

Call

or email

Nancy Evans

(804) 377-3582

nevans@donatelife.net

Total Patients Waiting1989-2012

Based on OPTN data

2013 Transplant Webinars

Thank you!

For more information:Shannon Dowell- sdowell@odt-alliance.org

This webinar was made possible by Grant Number UD2HS22186 from the Division of Transplantation, Health Resources and Services Administration, U.S. Department of Health and Human Services.