Post on 24-Feb-2016
description
National Core Indicators
Adult Family Survey Results 2010-2011
Josh Engler, Human Services Research Institutewww.nationalcoreindicators.orgjengler@hsri.orgJuly 13, 2012
What is NCI?
• NCI is a voluntary effort by public developmental disabilities agencies to measure and track their own performance.
• Collaboration began in 1997
• Currently 35 states represented plus 23 sub-state entities
• Coordinated by HSRI and NASDDDS
What is an “Indicator”?
• Indicators are standard measures used across states to assess the outcomes of services provided to individuals and families. Indicators address key areas of concern including employment, rights, service planning, community inclusion, choice, and health and safety.
NCI Performance AssessmentPers
onal O
utcomes
• Employment• Community
Participation• Choice &
Decision making
• Relationships
Family O
utcomes
• Information & Planning
• Access & Service Delivery
• Choice and Control
• Community Connections
• Satisfaction• Outcomes He
alth, W
elfare,
Syste
m
• Health and Welfare
• Respect & Rights
• Medications• Safety• Service
Coordination• Staff
Stability
NCI Participating States 2010-2013
2010-11 24 States
2011-12 29 States
2012-13 35 States
HI
WA
AZ OK
KY
AL
NC
PA
ME
MA
SD
TX
AR
GANM
NJ
MO
NY
LA
OH
NH
DCCA
FL
IL
ORWI
IN
MI
MS
SC
VA
MD
CT
RI
UT
What are the data sources?
• Adult Consumer Survey• Family Survey
Adult Family Survey (at home, 18+) Family Guardian Survey (out-of-home) Children Family Survey (at home, <18)
• System Indicators
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Family Survey Design
• Administered by mail• Includes demographics, six outcome areas • Combination of 5-point scale and yes/no
response options, open-ended comments• 79 questions on AFS, 53 on FGS, and 67 on
the CFS – will be shorter in next round!
Adult Family SurveySelected Results 2010-2011
10NCI Adult Family Survey Results 2010-2011
Sample and Analysis
• 9 states mailed 13,270 surveys• States- Florida, Georgia, Louisiana, North
Carolina, New Jersey, New Mexico, Ohio, Oklahoma, and Pennsylvania
• 3,884 returned; 3,654 valid surveys• Response rate 29% (valid 28%)• State averages are statistically tested against
national average
11NCI Family Survey Results 2010-2011
Respondent Demographics
5%
31%
53%
11%
Respondent Age
Under 35
35-54
55-74
75+
84%
8%
8%
Relationship
Parent
Sibling
Other
64% over age 55
12Florida NCI Family Survey Results 2010-2011
Number of Adults Living at Home
29%
51%
15%
5%
OneTwoThreeFour or More
13Florida NCI Family Survey Results 2010-2011
Out-of-Pocket Expenses
19%
16%
36%
26%
3%
Nothing$1-100$101-$1,000$1,001-$10,000$10,000+
14NCI Family Survey Results 2010-2011
Household Income
46% below $25,000
27%
19%28%
14%
12%Below $15,000
$15,001- $25,000
$25,001- $50,000
$50,001- $75,000
Over $75,000
15Florida NCI Family Survey Results 2010-2011
Information and Planning
16Florida NCI Family Survey Results 2010-2011
Information and Planning
17NCI Adult Family Survey Results 2010-2011
Information and Planning
Does your family member’s case manager/service coordinator tell you about public services that you are eligible for (e.g., food stamps, Supplemental Security Income [SSI], housing subsidies, etc.)?
State Always Usually Sometimes Seldom Never N
NCI Average 36% 25% 14% 10% 16% 3,358
Range of ‘always’ responses, by state. 15% - 47%
18NCI Adult Family Survey Results 2010-2011
Information and Planning
“Our case manager makes sure our family's opinions and decisions are important and taken into consideration when planning.”
“ (We need) better knowledge of available resources. If you don't know what to (or how to) ask, you don't find out information.”
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Access and Service Delivery
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Access and Service Delivery
21NCI Adult Family Survey Results 2010-2011
Access and Service DeliveryDo you feel that your family member’s day/employment setting is a healthy and safe environment?
State Always Usually Sometimes Seldom Never NNCI Average 66% 27% 5% 1% 1% 2,797
Range of ‘always’ responses, by state. 53% - 77%
22NCI Adult Family Survey Results 2010-2011
Access and Service Delivery
“We like our case worker, and all the people where our daughter gets "vocational training." We are happy with our in-home waiver and our case worker.”
“Dental - many dentists not equipped/trained to work with special needs. I am paying out of pocket for quality dental care by a dentist and X-rays and cleaning 3-4 times a year.”
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Choice and Control
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Choice and Control
25NCI Adult Family Survey Results 2010-2011
Choice and Control“We do have "freedom of choice" to choose a case management provider, but do not have control over the hiring. We can express grievances with provider if necessary.”
“We have the right to accept compatible workers or not to accept workers that are not compatible.”
“[I am satisfied with] having control over the hiring of support workers”
“I am always informed about how the money is spent.”
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Community Connections
27NCI Adult Family Survey Results 2010-2011
Community Connections
“Volunteer activities have increased his self-esteem and sense of belonging in the community.”
“We definitely need more resources for persons who have a more complex array of disabilities, not only for those whose disabilities are milder, more interaction with non disabled peers, one on one.”
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Satisfaction
29NCI Adult Family Survey Results 2010-2011
Satisfaction
Overall, are you satisfied with the services and supports your family and family member currently receive?
State Always Usually Sometimes Seldom Never NNCI Average 40% 43% 12% 2% 2% 3,451
Range of ‘always’ responses, by state. 22% - 51%
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Outcomes
31NCI Adult Family Survey Results 2010-2011
OutcomesHave the services or supports that you or your family member has received during the past year been either reduced, suspended, or terminated?
State Yes No NNCI Average 31% 69% 3,156
*Higher score is negative
Range of ‘yes’ responses, by state. 13% - 46%
32NCI Adult Family Survey Results 2010-2011
Outcomes“I am so grateful for the DD Waiver - it keeps my family member safe, busy and gives [individual in services] a meaningful life”
“Sometimes the goals are vague and it's hard to tell if they are being met. I think when you are dealing with our son, the main thing is for him to be happy and content. This is difficult to put down as a goal.”
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For More information
• jengler@hsri.org• www.nationalcoreindicators.org