Post on 29-Jul-2018
MEMBERSHIP
DIRECTORY
2017
Rev. 9/5/2017
1825 K Street, NW, Suite 1200 • Washington, DC 20006 • PH 202/783-2229 • FAX 202/534-3731 • Info@c-c-d.org • www.c-c-d.org
2
CCD MEMBERSHIP DIRECTORY
2017
ACCSES
1501 M Street NW, 7th Floor
Washington, DC 20005
(202) 349-4259 (office)
(202) 785-1756 (fax)
www.accses.org
Kate McSweeny kmcsweeny@accses.org
Terry Farmer trfarmer@accses.org
Gary Goosman ggoosman@accses.org
Jack Delaney jdelaney@access.org
ML Strategies
c/o Advance CLASS/Allies for Independence
701 Pennsylvania Ave., NW #900
Washington, DC 20004
www.alliesforindependence.org
Connie Garner cgarner@mlstrategies.com
202-434-7385
Kate Josephson kjosephson@mlstrategies.com
202-434-7430
American Academy of Pediatrics (AAP)
601 13th Street, NW, Ste. 400N
Washington, DC 20005
(202) 347-8600 (office)
(202) 393-6137 (fax)
www.aap.org
Allyson Perleoni aperleoni@aap.org
Aaron Emmel aemmel@aap.org
Pat Johnson pjohnson@aap.org
American Academy of Physical Medicine
and Rehabilitation (AAPM&R)
1501 M Street NW, 7th Floor
Washington, DC 20005
(202) 466-6550 (office)
(202) 785-1756 (fax)
www.aapmr.org
Britinia Galvin bgalvin@aapmr.org
Kate Stinneford kstinneford@aapmr.org
Melanie Dolak mdolak@aapmr.org
American Association of People with
Disabilities (AAPD)
2013 H Street, NW
Washington, DC 20006
(202) 457-0046 (office) V/TTY
(202) 457-0473 (fax)
http://www.aapd-dc.org
Zach Baldwin zbaldwin@aapd.com
Michael Murray mmurray@aapd.com
Helena Berger hberger@aapd.com
3
American Association on Health
and Disability (AAHD)
110 N. Washington Street, #340-A
Rockville, MD 20850
(301) 545-6140 (office)
(301) 545-6144 (fax)
www.aahd.us
Clarke Ross clarkeross10@comcast.net
Karl Cooper kcooper@aahd.us
American Association on Intellectual and
Developmental Disabilities (AAIDD)
501 Third Street, NW, Ste. 200
Washington, DC 20001
(202) 387-1968 (office)
(202) 387-2193 (fax)
http://www.aaidd.org
Danielle Webber dwebber@aaidd.org
Maggie Nygren mnygren@aaidd.org
Ravita Maharaj rmaharaj@aaidd.org
American Bar Association (ABA)
Commission on Disability Rights (CDR)
1050 Connecticut Avenue, NW, Suite 400
Washington, DC 20036-5303
(202) 662-1570 (office)
(202) 442-3439 (fax)
www.americanbar.org/disability
Michael Stratton cdr@americanbar.org
American Council of the Blind (ACB)
2200 Wilson Blvd, Suite 650
Arlington, VA 22201
(202) 467-5081 (office)
(202) 467-5085 (fax)
http://www.acb.org
Eric Bridges ebridges@acb.org
Tony Stephens astephens@acb.org
American Counseling Association (ACA)
5999 Stevenson Ave.
Alexandria, VA 22304
(703) 823-9800 (office)
(703) 823-0252 (fax)
Guila Todd gtodd@counseling.org
Art Terrazas aterrazas@counseling.org
American Dance Therapy Association (ADTA)
10632 Little Patuxent Parkway, Suite 108
Columbia, MD 21044-3263
(202) 686-1637 (office)
(202) 686-1637 (fax)
www.adta.org
Myrna Mandlawitz mrmassociates@verizon.net
3001 Veeazey Terrace, NW, Suite 825
Washington, DC 20008
(202) 686-1637
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American Foundation for the Blind (AFB)
1660 L Street, NW, Ste.513
Washington, DC 20036
(202) 469-6831(office/TDD)
(fax)
http://www.afb.org
Mark Richert mrichert@afb.net
Rebecca Sheffield rsheffield@afb.net
Sarah Malaier smalaier@afb.net
American Music Therapy Association (AMTA)
8455 Colesville Road, Ste. 1000
Silver Spring, MD 20910
(301) 589-3300 (office)
(301) 589-5175 (fax)
http://www.musictherapy.org
Judy Simpson simpson@musictherapy.org
Rebecca Preddie preddie@musictherapy.org
Myrna Mandlawitz mrmassociates@verizon.net
3001 Veeazey Terrace, NW, Suite 825
Washington, DC 20008
(202) 686-1637
American Network of Community Options
and Resources (ANCOR)
1101 King Street, #380
Alexandria, VA 22314
(703) 535-7850 (office)
(703) 535-7660 (fax)
http://www.ancor.org
Esme Grant egrant@ancor.org
Katherine Berland kberland@ancor.og
American Occupational Therapy
Association (AOTA)
4720 Montgomery Lane Suite 200
Bethesda, MD 20814-3449
(3010 652-2682 (office)
(301) 652-7711 (fax)
http://www.aota.org
Chuck Willmarth cwillmarth@aota.org
Heather Parsons hparsons@aota.org
John Ray jray@aota.org
Laura Hooper lhooper@aota.org
Abraham Saffer asaffer@aota.org
American Physical Therapy Association (APTA)
1111 N. Fairfax Street
Alexandria, VA 22314
(703) 684-2782 (office)
(703) 684-7343 (fax)
http://www.apta.org
Kara Gainer karagainer@apta.org
Deb Crandall deborahcrandall@apta.org
Michael Hurlbut michaelhurlbut@apta.org
Ken Sprague kensprague@apt.org
Stephanie Katz stephaniekatz@apta.org
American Psychological Association (APA) Ben Vonachen bvonachen@apa.org
American Diabetes Association (ADA)
1701 North Beauregard Street
Alexandria, VA 22311
(703) 549-1500 (office)
(703) 549-8748 (fax)
www.diabetes.org
Rob Goldsmith rgoldsmith@diabetes.org
Krista Maier kmaier@diabetes.org
Katie Hathaway khathaway@diabetes.org
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750 First Street, NE
Washington, DC 20002-4242
(202) 336-5500 (office)
(202) 336-6123 (TDD)
(202) 336-6040 (fax)
http://www.apa.org/ppo/
American Speech-Language-Hearing
Association (ASHA)
444 N. Capitol Street, NW, Ste. 715
Washington, DC 20001
(202) 624-7750 (office)
(202) 624-5955 (fax)
http://www.asha.org
Laurie Alban Havens lalbanhavens@asha.org
Catherine Clarke cclarke@asha.org
Daneen Grooms dgrooms@asha.org
Kate Ogden kogden@asha.org
American Therapeutic Recreation
Association (ATRA)
1501 M Street NW, 7th Floor
Washington, DC 20005
(202) 466-6550 (office)
(202) 785-1756 (fax)
http://www.atra-tr.org
Emily Whiteman Emily.whiteman@ppsv.com
Peter Thomas peter.thomas@ppsv.com
Sara Rosa sara.rosa@ppsv.com
Steve Postal steven.postal@ppsv.com
APSE – The Network on Employment (APSE)
451 Hungerford Drive, Ste. 700
Rockville, MD 20850
(414) 581-3032 (office)
(804) 278-9377 (fax)
www.apse.org
Association of Assistive Technology Act Programs
(ATAP)
440 First Street NW, Suite 360
Washington, DC 20001
(202) 344-5674 (office)
(fax)
www.ataporg.org
Audrey Busch Audrey.busch@ataporg.org
Diane Golden diane.golden@ataporg.org
Association of University Centers on
Disabilities (AUCD)
1010 Wayne Ave., Ste. 1000
Silver Spring, MD 20910
(301) 588-8252 (office)
(301) 588-2842 (fax)
http://www.aucd.org
Denise Rozell drozell@aucd.org
Christine Grosso cgrosso@aucd.org
John Tschida jtschida@aucd.org
Kim Musheno kmusheno@aucd.org
Liz Weintraaub lweintraub@aucd.org
Diane Dressler diane@communityliferesources.com
6
6 Drummond Ct.
Williamsburg, VA 23188
(757) 774-8580
Autism Society of American (ASA)
4340 East West Highway, #350
Bethesda, MD 20814
(301) 657-0881 (office)
( ) (fax)
http://www.autism-society.org/
Tonia Ferguson tferguson@autism-society.org
Wainie Youn wyoun@autism-society.org
Autistic Self-Advocacy Network
P.O. Box 66122
Washington, DC 20036
(202) 596-1056 (office)
Samantha Crane scrane@autisticadvocacy.org
Kelly Israel kisrael@autisticadvocacy.org
Zoe Gross zgross@autisticadvocacy.org
Julia Bascom jbascom@autisticadvocacy.org
Bazelon Center for Mental Health Law (BCMHL)
1101 15th Street, NW, Ste. 1212
Washington, DC 20005
(202) 467-5730 (office)
(202) 223-0409 (fax)
http://www.bazelon.org
Bethany Lilly bethanyl@bazelon.org
Alison Barkoff alisonb@bazelon.org
Emily Read emilyr@bazelon.org
Jennifer Mathis jenniferm@bazelon.org
Julia Graff juliag@bazelon.org
Brain Injury Association of America (BIAA)
1608 Spring Hill Road, Ste. 110
Vienna, VA 22182
(703) 761-0750 (office)
(703) 761-0755 (fax)
www.biausa.org
Amy Colberg acolberg@biausa.org
Sara Rosa sara.rosa@ppsv.com
Steve Postal steven.postal@ppsv.com
Center on Budget and Policy Priorities (CBPP)
820 First Street, NE, Suite 510
Washington, DC 20002
(202) 408-1080 (office)
(202) 408-1056 (fax)
www.cbpp.org
Judith Solomon Solomon@cbpp.org
Christopher and Dana Reeve Foundation
636 Morris Turnpike, Suite 3A
Short Hills, NJ 07078
(800) 225-0292 (office)
Justin Beland justin_beland@hcmstrategists.com
Kimberly Beer kbeer@christopherreeve.org
Maggie Goldberg mgoldberg@christopherreeve.org
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(973) 912-9433 (fax)
Community Legal Services (CLS)
3638 N Broad Street
Philadelphia, PA 19140
(215) 227-2417 (office)
(215) 227-2435 (fax)
www.clsphila.org
Claire Grandison cgrandison@clsphila.org
Jennifer Burdick jburdick@clsphila.org
Richard Weishaupt rweishaupt@clsphila.org
Jonathan Stein jstein@clsphila.org
Conference of Educational Administrators
of Schools and Programs for the Deaf (CEASD)
P.O. Box 685
Washington Grove, MD 20880
(301) 990-2847 (office)
(301) 990-2848 (fax)
http://www.ceasd.org
Barbara Raimondo baraimondo@me.com
Council for Exceptional Children (CEC)
2900 Crystal Drive, Ste. 1000
Arlington, VA 22202
(703) 264-9406 (office)
(703) 243-0410 (fax)
http://www.cec.sped.org
Deborah Ziegler debz@cec.sped.org
Council for Learning Disabilities (CLD)
15122 Red Cedar Drive
Burtonsville, MD 20866-1386
(301) 549-1779 (home)
http://www.cldinternational.org
Debi Gartland gartland@towson.edu
Roberta Strosnider rstrosnider@comcast.net
Council of Parent Attorney and Advocates (COPAA)
P.O. Box 6767
Towson, Maryland 21285
(844) 426-7224 (office)
(410) 372-0209 (fax)
www.copaa.org
Laura Kaloi lkaloi@wpllc.net
Denise Marshall denise@copaa.org
Council of State Administrators of Vocational
Rehabilitation (CSAVR)
1 Research Court Suite 450
Rockville, MD 20850
(301) 519-8023 (office)
(866) 322-4434(fax)
Stephen Wooderson swooderson@rehabnetwork.org
8
Dialysis Patient Citizens (DPC)
1012 14th Street, NW Ste. 905
Washington, DC 20005
(202) 789-6931 (office)
(202) 789-6935 (fax)
Jackson Williams jwilliams@dialysispatients.org
Disability Rights Education and Defense
Fund, Inc. (DREDF)
3075 Adeline Street, #210
Berkley,CA 94703
http://www.dredf.org
Silvia Yee syee@dredf.org
Marilyn Golden mgolden@dredf.org
Mary Lou Breslin mlbreslin@dredf.org
Susan Henderson shenderson@dredf.org
Division for Early Childhood of
the CEC (DEC/CEC)
6129 Calico Pool Lane
Burke, VA 22015
(703) 850-1187 (office)
(703) 250-4935 (fax)
http://www.dec-sped.org
Sharon Walsh walshtaylo@aol.com
Division for Learning Disabilities of CEC (DLD)
932 Raymond Rd.
Charlottesville, VA 22959-
(434) 924-0759 (office)
(434) 924-0747 (fax)
www.teachingld.org
David Bateman dfbate@ship.edu
Easter Seals (ES)
1425 K Street, NW, Ste 200
Washington, DC 20005
(202) 347-3066 (office)
(202) 737-7914 (fax)
http://www.easter-seals.org
Katy Beh Neas kneas@easterseals.com
Maynard Friesz mfriesz@easterseals.com
Eileen Dombrowski edombrowski@easterseals.com
Jennifer Dexter jdester@easterseals.com
Mary Andrus mandrus@easterseals.com
Epilepsy Foundation (EF)
8301 Professional Place East
Landover, MD 20785-2238
(301) 459-3700 (office)
(301) 731-3842 (fax)
http://www.epilepsyfoundation.org
Geneva Kropper gkropper@efa.org
Alexandra (Sandy) Finucane afinucane@efa.org
Beatriz Duque Long bduquelong@efa.org
Angela Ostrom aostrom@efa.org
Cherree Sanders csanders@efa.org
Brian Fiske bfiske@efa.org
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Family Voices
304 E Street NE
Washington, DC 20002
(202) 546-0558 (office)
www.familyvoices.org
Janis Guerney jguerney@familyvoices.org
Main Office:
3701 San Mateo Blvd NE, #103
Albuquerque, NM 87110
Goodwill Industries International (GII)
600 Maryland Ave., SW, #800 West
Washington, DC 20008
(202) 508-7494 (office)
(202) 530-6500 (fax)
http://www.goodwill.org
Laura Willing laura.walling@goodwill.org
Paul Seifert paul.seifert@goodwill.org
Helen Keller National Center (HKNC)
141 Middle Neck Road
Sands Point, NY 11050
(516) 944-8900 (office)
(516) 944-8367 (TTY)
(516) 944-5984 (fax)
www.hknc.org
Susan Ruzenski sue.rezenski@hknc.org
Higher Education Consortium for
Special Education (HECSE)
4425 Walsh Street
Chevy Chase, MD 20815
(202) 812-9096 (office)
( ) (fax)
www.hecse.org
Jane West janewestdc@mail.com
IDEA Infant and Toddler Coordinators Association
6129 Calico Pool Lane
Burke, VA 22015
(703) 850-1187 (office)
(703) 250-4935 (fax)
www.ideainfanttoddler.org
Maureen Greer mhmgreer@aol.com
Sharon Walsh walshtaylo@aol.com
Institute for Educational Leadership/Center for
Workforce Development (IEL/CWD)
4301 Connecticut Ave, NW, #1000
Washington, DC 20008
(202) 822-8405 (office)
www.iel.org
Curtis Richards richardsc@iel.org
Dana Fink finkd@iel.org
Jennifer Thomas thomasj@iel.org
Justice in Aging (JIA) Tracey Gronniger tgronniger@justiceinaging.org
10
1444 Eye Street NW, Suite 1100
Washington, DC 20005
(202) 289-6976(office)
(202) 289-7224 (fax)
Jennifer Goldberg jgoldberg@justiceinaging.org
Kate Lang klang@justiceinaging.org
Natalie Kean nkean@justiceinaging.org
Learning Disabilities Association of America (LDA)
3001 Veazey Terrace, NW, Suite 825
Washington, DC 20008
(202) 686-1637
http://www.ldaamerica.org
Myrna Mandlawitz mrmassociates@verizon.net
Lutheran Services in America (LSA)
100 Maryland Ave., NE Ste. 500
Washington, DC 20002
(202) 499-58431(office)
(fax)
www.lutheranservices.org
Sarah Meek smeek@lutheranservices.org
Madison House Autism Foundation (MHAF)
15201 Shady Grove Road, Suite 200
Rockville, MD 20850
(240) 467-8979 or (301) 467-8979 (office)
http://www.madisonhouseautism.org/
Adrienne McBride
amcbride@madisonhouseautism.org
Desiree Kameka
dkameka@madisonhouseautism.org
Mental Health America (MHA)
2000 N. Beauregard St., 6th Floor
Alexandria, VA 22311
(703) 684-7722 (office)
(703) 684-5968 (fax)
http://www.mentalhealthamerica.net/
Casey Dillon cdillon@mentalhealthamerica.net
Debbie Plotnick dplotnick@mentalhealthamerica.net
Theresa Nguyen tnguyen@mentalhealthamerica.net
National Academy of Elder Law Attorneys (NAELA)
1412 K Street, NW
Washington, DC 22201
(703) 942-5711 (office)
(202) 789-3606 (fax)
David Goldfarb dgoldfarb@naela.org
National Alliance for Caregiving (NAC)
4720 Montgomery Lane, Suite #205
Bethesda, MD 20814
(301) 718-8444 (office)
(301) 951-9067 (fax)
www.caregiving.org
C. Grace Whiting gracewhiting@caregiving.org
Maya Pasovic assist@caregiving.org
Michael Reese Wittke mike@caregiving.org
Stephanie Herndon stephanie@caregiving.org
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National Alliance on Mental Illness (NAMI)
3803 N. Fairfax Drive, Ste.100
Arlington, VA 22203
(703) 524-7600 (office)
(703) 524-9094 (fax)
http://www.nami.org
Andrew Sperling Andrew@nami.org
Dania Douglas ddouglas@nami.org
Darcy Gruttadaro darcy@nami.org
National Alliance to End Homelessness (NAEH)
1518 K Street NW, #410
Washington, DC 20005
(202) 638-1526 (office)
(202) 638-4664 (fax)
www.endhomelessness.org
Jayme Day jday@naeh.org
Sharon McDonald smcdonald@naeh.org
Steve Berg sberg@naeh.org
National Association for the Advancement
of Orthotics and Prosthetics (NAAOP)
1501 M Street NW, 7th Floor
Washington, DC 20005
(202) 466-6550 (office)
(202) 737-2517 (fax)
www.naaop.org
Emily Whiteman Emily.whiteman@ppsv.com
Peter Thomas peter.thomas@ppsv.com
Sara Rosa sara.rosa@ppsv.com
National Association of Councils on Developmental
Disabilities (NACDD)
1825 K Street, NW, Suite 600
Washington, DC 20006
(202) 506-5813 (office)
(202) 506-5846 (fax)
http://www.nacdd.org
Donnal Meltzer dmeltzer@nacdd.org
National Association of Disability
Representatives (NADR)
c/o Akerman Senterfitt LLP
750 9th Street, NW, Ste. 750
Washington, DC 20001
(202) 824-1725 (office)
(202) 393-5959 (fax)
www.nadr.org
Jeanne Morin jeanne.morin@akerman.com
National Association of School
Psychologists (NASP)
4340 East West Highway, Ste. 402
Bethesda, MD 20814
(301) 657-0270 (office)
(301) 657-0275 (fax)
Kelly Valliancourt Strobach
kvallancourt@naspweb.org
Mary Beth Klotz mbklotz@naspweb.org
Sheila Desai sdesai@naspweb.org
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http://www.nasponline.org
National Association of State Directors of
Developmental Disabilities Services (NASDDDS)
113 Oronoco Street
Alexandria, VA 22314
(703)·683·4202 (office)
(703)·683·8773 or (703)·684·1395 (fax)
www.nasddds.org
Rie Kennedy-Lizotte rklizotte@nasddds.org
Dan Berland dberland@nasddds.org
National Association of State Directors of
Special Education (NASDSE)
225 Reinekers Lane, Ste. 420
Alexandria, VA 22314
(703) 519-1506 (office)
(703) 519-3808 (fax)
http://www.nasdse.org
Nancy Reder nancy.reder@nasdse.org
Valerie Williams valerie.williams@nasdse.org
National Association of State Head Injury
Administrators (NASHIA)
PO Box 878
Waitsfield, VT 05673
(802) 498-3349 (office)
(573) 636-6946 (public policy)
(801) 217-6382 (fax)
www.nashia.org
Susan Vaughn susanvaughn@mchsi.com
Rebeccah Wolfkiel rwolfkiel@ridgepolicygroup.org
National Association of States United
for Aging and Disabilities (NASUAD)
1201 15th Street, NW, Suite 250
Washington, DC 20005
(202) 898-2578 (office)
(202) 898-2583 (fax)
www.nasuad.org
Camille Dobson cdobson@nasuad.org
Nanette Relave nrelave@nasuad.org
Erica Anderson eanderson@nasuad.org
Damon Terzaghi dterzaghi@nasuad.org
ErinWhite ewhite@nasuad.org
National Center for Learning Disabilities (NCLD)
1220 L Street NW, #815
Washington, DC 20005
(202) 637-8408 (office)
( ) (fax)
www.ncld.org
Meghan Casey Whittaker mcasey@ncld.org
Lindsay Jones ljones@ncld.org
Kelly Fomalont kfomalong@ncld.org
Kim Hymes khymes@ncld.org
13
National Center for Special Education in Charter
Schools (NCSECS)
275 Madison Ave 6th Floor
New York, NY 10016
www.ncsecs.org
Lauren Morando Rhim lmrhim@ncsecs.org
(301) 655-1992
National Committee to Preserve Social
Security and Medicare (NCPSSM)
111 K Street, NE Suite 700
Washington, DC 20002-8105
(202) 216-0420 (office)
(202) 216-0446
www.ncpssm.org
Webster Phillips phillipsw@ncpssm.org
National Council for Behavioral Health (NCBH)
1400 K St. NW, Ste. 400
Washington, DC 20005
(202) 684-7457 (office)
(202) 684-7472 (fax)
www.thenationalcouncil.org
Chuck Ingoglia chucki@thenationalcouncil.org
Michael Petruzzelli michaelp@thenationalcouncil.org
Rebecca Farley rebeccaf@thenationalcouncil.org
Stephanie Pellit stephaniep@thenationalcouncil.org
Nicole Cadovius nicolec@thenationalcouncil.org
Robyn Martin robynm@thenationalcouncil.org
Samantha Holcombe
samanthah@thenationalcouncil.org
Megan Dormond megand@thenationalcouncil.org
Shannon Haworth shannonh@thenationalcouncil.org
Adam Swanson Adams@thenationalcouncil.org
Colleen O’Donnell colleeno@thenationalcouncil.org
Everly Groves everlyg@thenationalcouncil.org
Jake Bowling jakeb@thenationalcouncil.org
Jeannie Campbell jeanniec@thenationalcouncil.org
Kirsten Reed kirstenr@thenationalcouncil.org
Margaret Jaco margaretj2@thenationalcouncil.org
Nina Marshall ninam@thenationalcouncil.org
Shelina Foderingham
shelinaf@thenationalcouncil.org
Shannon Mace shannonm@thenationalcouncil.org
Dana Lange danal@thenationalcouncil.org
National Council on Aging (NCOA)
251 18th St South, Suite 500
Arlington, VA 22202
571-527-3900 (office)
(fax)
Joe Caldwell joe.caldwell@ncoa.org
Howard Bedlin howard.bedlin@ncoa.org
Leslie Fried leslie.fried@ncoa.org
Marci Phillips marci.phillips@ncoa.org
National Council on Independent Living (NCIL)
2013 H Street, NW, 6th Floor
Washington, DC 20006
Kelly Buckland Kelly@ncil.org
Lindsay Baran Lindsay@ncil.org
Maureen Hollowell mhollowell@endependence.org
14
(202) 207-0340 (office)
(202) 207-0341 (fax)
www.ncil.org
Mike Bachhuber mikeb@ilcw.org
3810 Milwaukee St.
Madison, WI 53714
(608) 256-9257 (office)
(608) 256-9301 (fax)
Steve Higgins shiggins@iacil.org
100 Laurel Street, Suite 122
East Bridgewater, MA 02333
(508) 583-2165 (office)
National Disability Institute (NDI)
1667 K Street, NW, #640
Washington, DC 20006
(202) 296-2043 (office)
(202) 296-2047 (fax)
www.ndi-inc.org
Chris Rodriguez crodriguez@ndi-inc.org
National Disability Rights Network (NDRN)
820 1st Street NE, #740
Washington, DC 20002
(202) 408-9514 (office)
(202) 408-9520 (fax)
http://www.nddrn.org
Eric Buehlmann eric.buehlmann@ndrn.org
Curt Decker curt.decker@ndrn.org
Michelle Bishop michelle.bishop@ndrn.org
Dara Baldwin dara.baldwin@ndrn.org
Elizabeth Priaulx elizabeth.priaulx@ndrn.org
Ron Hager ron.hager@ndrn.org
David Hutt david.hutt@ndrn.org
Amanda Lowe Amanda.lowe@ndrn.org
Diane Smith Howard diane.smithhoward@ndrn.org
National Down Syndrome Congress (NDSC)
2107 Dumfries Terrace
Olney, MD 20832
(301) 237-7011 (office)
(fax)
www.ndsccenter.org
Ricki Sabia rickisabia@gmail.com
Susan Goodman susan@ndsccenter.org
Stephanie Smith Lee stephaniesmithlee@gmail.com
National Down Syndrome Society (NDSS)
1601 L Street NW, #925
Washington, DC 20036
(202) 465-3221 (office)
( ) (fax)
http://www.NDSS.org
Stephanie Smith Lee stephaniesmithless@gmail.com
Ashley Helsing ahelsing@ndss.org
Nicole Patton npatton@ndss.org
Ginny Sessions Siller gsessions@ndss.org
Sara Weir sweir@ndss.org
Heather Sachs hsachs@ndss.org
15
National Health Law Program (NHeLP)
1444 I Street NW, @1105
Washington, DC 20005
(202) 289-7661 (office)
(202) 289-7724 (fax)
David Machledt Machledt@healthlaw.org
Jennifer Lav lav@healthlaw.org
Mara Youdelman Youdelman@healthlaw.org
National Industries for the Blind (NIB)
1310 Braddock Place
Alexandria, VA 22314
(703) 310-0520 (office)
(703) 671-9053 (fax)
www.nib.org
Rick Webster rwebster@nib.org
Ned Rupp nrupp@nib.org
Darren Wyatt dwyatt@nib.org
Anthony Stephens astephens@nib.org
Angela Hartley ahartley@nib.org
National Multiple Sclerosis Society (NMSS)
1100 New York Ave., NW, Ste. 440 East
Washington, DC 20005
(202) 408-1500 (office)
(202) 408-0696 (fax)
www.nationalmssociety.org
Laura Weidner laura.weidner@nmss.org
John Wylam john.wylam@nmss.org
Kim Calder kim.calder@nmss.org
733 Third Ave
New York, NY 10017
(212) 476-0450
National Organization on Disability (NOD)
77 Waters Street, Suite 204
New York, NY 10005
(646) 505-1191 ext. 122 (office)
(646) 505-1184 (fax)
www.nod.org
Ron Drach consultrwd@yahoo.com
7600 River Falls Drive
Potomac, MD 20854
(240) 413-3183
National Organization of Social Security
Claimants’ Representatives (NOSSCR)
1025 Connecticut Avenue, NW Suite 709
Washington, DC 20036
(202) 457-7775 (office)
(202) 457-7773 (fax)
http://www.nosscr.org
Stacy Cloyd stacy.cloyd@nosscr.org
Ahmed Elsayed ahmed.elsayed@nosscr.org
National PTA
1250 North Pitt Street
Alexandria, VA 22314
(703) 518-1200 (office)
(703) 836-0942 (fax)
Joshua Westfall jwestfall@pta.org
Jacki Ball jball@pta.org
Elizabeth Rorick erorick@pta.org
National Respite Coalition (NRC)
4016 Oxford Street
Jill Kagan jkagan@archrespite.org
16
Annandale, VA 22003
(703) 256-2084 (office)
(703) 256-0541 (fax)
http://archrespite.org/national-respite-coalition
Paralyzed Veterans of America (PVA)
801 18th Street, NW
Washington, DC 20006
(202) 872-1300 (office)
(202) 416-7706 (fax)
http://www.pva.org
Heather Ansley heathera@pva.org
Lee Page leep@pva.org
Susan Prokop susanp@pva.org
Parent to Parent USA
2030 M Street, NW Suite 350
717-503-8992 (office)
(fax)
Katherine Brill ksbrill@comcast.net
Perkins School for the Blind
1501 M Street NW, 7th Floor
Washington, DC 20005
(202) 349-4243 (office)
(202) 785-1756
Leif Brierley leif.brierley@ppsv.com
Bobby Silverstein bobby.silverstein@ppsv.com
Sara Rosa sara.rosa@ppsv.com
Rehabilitation Engineering and Assistive
Technology Society of North America (RESNA)
1700 N. Moore Street, Ste. 1540
Arlington, VA 22209
(703) 524-6686 (office)
(703) 524-6630 (fax)
http://www.resna.org
Mike Brogioli mbrogioli@resna.org
Paul Galonsky pgalonsky@resna.org
RespectAbility
4340 East-West Highway, Suite 350
Bethesda, MD 20814
(202) 365-0787 (office)
(fax)
Philip Pauli philipp@respectabilityusa.org
Jennifer Laszlo Mizrahi
jenniferm@respectabilityusa.org
School Social Work Association of
America (SSWAA)
3001 Veasey Terrace, NW, Ste. 825
Washington, DC 20008
(202) 686-1637 (office)
(202) 686-1637 (fax)
http://www.sswaa.org
Myrna Mandlawitz mrmassociates@verizon.net
3001 Veeazey Terrace, NW, Suite 825
Washington, DC 20008
(202) 686-1637
Libby Nealis libby@sswaa.org
17
Source America
8401 Old Courthouse Road
Vienna, VA 22182
(571) 571-226-4660 (office)
(571) 288-9146 (fax)
www.sourceamerica.org
Alicia Epstein aepstein@sourceamerica.org
Ashlie Strackbein astrackbein@sourceamerica.org
Shari Walton swalton@souceamerica.org
Special Needs Alliance
6341 E. Brian Kent Drive
Tucson, AZ 85710
(520) 546-1005 (office)
(520) 546-5119 (fax)
Morris Klein morrisklein@morrisklein.com
Brian Lindberg brian@consumers.org
TASH
1875 Eye Street NW, Suite 582
Washington, DC 20006
(202) 429-2080 (office)
( ) (fax)
http://www.tash.org
Tia Nelis tnelis@tash.org
Raquel Rosa rrosa@tash.org
Jenny Stonemeier jstonemeier@tash.org
Gabby Williams gwilliams@tash.org
Teacher Education Division/CEC (TED/CEC)
4425 Walsh Street
Chevy Chase, MD 20815
(202) 812-9096 (office)
( ) (fax)
www.tedced.org
Jane West janewestdc@mail.com
The Advocacy Institute
P.O. Box 565
Marshall, VA 20116
(540) 364-0051 phone
www.advocacyinstitute.org
Candace Cortiella candace@advocacyinstitute.org
The Arc
1825 K Street, NW, Suite 1200
Washington, DC 20006
(202) 783-2229 (office)
(202) 783-5433 (TDD)
(202) 534-3731 (fax) http://www.thearc.org
Nicole Jorwic Jorwic@thearc.org
Annie Acosta Acosta@thearc.org
Julie Ward ward@thearc.org
Marty Ford ford@thearc.org
Shira Wakschlag shira@thearc.org
TJ Sutcliffe Sutcliffe@thearc.org
Michael Nagel policy2@thearc.org
CCD Administrative Support:
Brenda Walker walker@thearc.org
18
The Jewish Federations of North America
1720 I Street, NW, #800
Washington, DC 20006
(202) 736-5871 (office)
(202) 785-4937 (fax)
http://jewishfederations.org/
Aaron Kaufman
Aaron.Kaufman@JewishFederations.org
Elizabeth Leibowtiz
Elizabeth.leibowitz@jewishfederations.org
Jonathan Westin
jonthan.westin@jewishfederations.org
Tourette Association of America (TAA)
1301 K Street, NW, #600 East Tower
Washington, DC 20005
(202) 408-7009 (phone)
(202) 408-3260 (fax)
http://www.tsa-usa.org
Elridge Proctor Elridge@tourette.org
Timothy Convy timothy@tourette.org
United Cerebral Palsy (UCP)
1825 K Street, NW, Suite 600
Washington, DC 20006
(202) 776-0406 (office)
(202) 776-0414 (fax) http://www.ucp.org
Ellie Collinson ecollinson@ucp.org
Jennifer McCue jmccue@ucp.org
United Spinal Association (USA)
1660 L Street, NW, Ste. 504
Washington, DC 20036
(202) 556-2076 (office)
(202) 223-2380 (fax)
www.unitedspinal.org
Kent Keyser kkeyser@unitedspinal.org
Jasey Cárdenas jcardenas@unitedspinal.org
Alexandra Bennewith abennewith@unitedspinal.org
Ross Meglathery rmeglathery@vetsfirst.org
Vietnam Veterans of America (VVA)
8719 Colesville Road, Suite 100
Silver Spring, MD 20910
(301) 585-4000 ext. 118 (office)
(301) 585-3180 (fax)
Bernie Edelman bedelman@vva.org
NEW MEMBERS – 2017
American Civil Liberties Union
Foundation (ACLU)
915 15th Street, NW
Washington, DC 20005
(202) 715-0806 (office)
Vania Leveille vleiville@aclu.org
19
() (fax)
Center for Public Representation (CPR)
1825 K Street, NW Suite 600
Washington, DC 20006
(202) 854-1270 (office)
(413) 586-5711(fax)
Alison Barkoff abarkoff@cpr-ma.org
Council of Administrators of Special Education
(CASE) (478) 333-6892 (office)
() (fax)
Luann Purcell lpurcell@casecec.org
Michael J Fox Foundation (MJFF)
1025 Vermont Ave., NW Suite 1120
Washington, DC 20005
(202) 638-4104 ext. 352 (office)
() (fax)
Stephanie Katz skatz@michaeljfox.org
Ted Thompson tthompson@michaeljfox.org
National Place (NP)
c/o SPAN
35 Halsey Street
Newark, NJ 07102
(973) 642-8100 (office)
() (fax)
Diane Autin dautin@parentsatthetable.org