Post on 28-Feb-2018
7/25/2019 Hope Parkinson Program Summer Newsletter
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JulyIAugustISeptember 2016
Parkinsons Disease and
Sun Exposure
Caring Community
Summer Ice Cream Socials
HOPE HEALTHCARE SERVICES
7/25/2019 Hope Parkinson Program Summer Newsletter
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Until there is a cure, there is a community.Many of our participants have chosen to live by this powerful phrase - believing thatthose who live with Parkinsons disease are stronger together. All of us at Hope believe
this too.Our program includes nearly 2,000 vibrant and passionate people living with PD andtheir care partners too. Within this close-knit community, participants find empathy,compassion, motivation, and friendship. Tis past season, movement classes, supportgroups and inspiring events brought members together to share successes and learnfrom experiences.
More than 150 people gathered at Lakes Park to raise awareness for our PD Communityat the Walk 4 Hope. Other participants enjoyed a beloved Parkinson Program tradition:the annual Sunset Cruise. Whether at a large event or a small gathering we are simplybetter together.
Spend the summer among friends. Enjoy a new class, join a support group and stop byone of our Ice Cream Socials to have some fun!
Warm regards,
Samira K. BeckwithPresident and CEOHope HealthCare Services
D F H P P
Parkinsons Disease and Sun ExposureDr. Amanda Avila
As the season winds to a closeand summers heat, sun andrain is once again upon us,Id like to take a moment todiscuss the risks people withParkinsons disease face with
added sun exposure.As we already know, PD is a disease of the whole body.Not only does it affect movements, balance and the GItract, but it can also affect the skin. In fact, people withPD have almost twice the risk of developing skin cancersincluding melanoma, the most serious type. Somescientists even speculate that both PD and melanomashare a common genetic link that it is actually a lackof natural pigmentation that predisposes people to bothskin cancer and Parkinsons disease. Individuals with PDare also more susceptible to other skin diseases such as
actinic keratosis and seborrheic dermatitis, both of whicause dry, flaky and sometimes itchy skin.
Good skin care and regular visits to the dermatologistcan go a long way in protecting against and treating thediseases. Every person with Parkinsons disease shouldsee a dermatologist for an annual screening. In the
interim, sunscreen should be used daily and reappliedfrequently, especially while spending time outside. Tisis especially important in South Florida, where ourexposure to the sun is so great. Be safe, stay cool andcover up!
Amanda Avila, MDHope Parkinson Program Medical Director
Movement Disorder Specialist, Florida Neurology GroupOffices in Cape Coral 239-574-4242 andFort Myers 239-936-3554
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Ask a PD Expert: Te Milk EffectKathrynne Holden, MS, RD
Do you use levodopa? If so, have you noticed that whenyou drink milk, the medication doesnt work as well?
Not everyone is sensitive to the protein in cows and
goats milk, but for those who are, a glass of milk in themorning can block their levodopa for the rest of theday. Tis is because the milk contains an unusually highamount of the five neutral amino acids that competewith levodopa for absorption from the small intestine.Milk has an even higher ratio of these amino acids thanmeat, poultry, or fish.
Almond, soy and rice milk alternatives dont containthis high ratio of aminos, so they can be safelysubstituted. Also, some people find that cheese andGreek yogurt do not produce as severe an effect; this is
because some of the whey is drawn off in production,taking with it a large amount of the competing aminoacids.
Do be certain that you are getting enough protein daily about one-half gram of protein per pound of bodyweight per day. Fatty fish, meat, poultry, cooked driedbeans, nuts and seeds are all good sources of protein.
Capturing Grace is a story about two realms. One is occupied by some of the mostacclaimed modern dancers in the world. Te other is inhabited by a group of peoplewith Parkinsons disease. Tis film is about what happens when those worlds intersect.For me, its also a personal story. I was diagnosed with Parkinsons eight years ago, thethird member of my family to receive that news.
Dave Iverson
Friday, July 15 at 1 p.m.Hope Cape Community Room2430 Diplomat Pkwy. E,
Cape Coral
Friday, Aug. 12 at 1 p.m.Hope HealthParkCommunity Room
9470 HealthPark Circle,Fort Myers
Friday, Sept. 16 at 1 p.m.Hope BonitaCommunity Room
27200 Imperial Parkway,Bonita Springs
A S :Hope PD Program Ice Cream SocialsCreate your own ice cream sundae complete with all the toppings
while enjoying fun and fellowship with your friends. Immediately
following the ice cream social, you are invited to watch CapturingGrace, a 50-minute documentary from filmmaker Dave Iverson,
who also directed a film about Parkinsons for the PBS Frontline
series called My Father, My Brother and Me. RSVP is required.
See calendars for details.
Kathrynne Holden, MS,Moderator of the NationalParkinson Foundation ForumAsk About Nutrition, and author of Eat Well, Stay Wellwith Parkinsons Disease, and Cook Well, Stay Well withParkinsons Disease.www.nutritionucanlivewith.com.
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Fighting Back Against PDTe Rock Steady Boxing program at FYZICAL FitnessTerapy & Balance Center in Fort Myers includes boxingdrills and conditioning or optimal agility, speed, endurance,accuracy, hand-eye coordination, ootwork and overallstrength. No boxing experience is necessary, and male andemale participants range in age rom mid-30s to 80s.
Tree class levels are offered:PD 1: Mon. at 11 a.m.; Wed. at 1:30 p.m.
PD 2: ue. and Turs. at 1:30 p.m.PD 3: ue. and Turs. at noon
PD 1 & 2: Sat. at noon
For additional inormation or to schedule an appointment,call Julie Shamburger at 239-561-1177. Classes are offered ona first-come, first-serve basis and are available or purchaseby class or as part o a membership. Remember to consultyour physician beore starting any exercise program.
SAVE HE DAETe Davis Phinney Foundation:Te Victory SummitFriday, March 3, 2017Charlotte Harbor Event Center
In collaboration with the Hope Parkinson Program, Te Davis Phinney
Foundation will host their world-renowned Te Victory Summit symposiaseries. Tis incredible event will take the place o Hopes annual SpringSymposium and is expected to bring together as many as 1,000 peoplerom local communities or a day o inspiration and learning. Includingpresentations by internationally and nationally recognized researchers,clinicians and physical therapists, Te Victory Summit symposia deliver up-to-date inormation and practical tools that people with Parkinsons can useto live well today. Participation in Te Victory Summit is ree, and the all-dayevent is open to all members o the Parkinsons community.
Tis event is ree, and pre-registration will open in December 2016.
Attendees SayIt Best:
Te best gif you can giveyoursel and your uture?Attend this conerence,and bring a riend withParkinsons so you can
support each other afer youreturn home. Very positive,inspiring, un and so manytips to improve your lie.
Tis was one o the mostpositive and uplifing dayson our 29-year journey withParkinsons.
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Fall Forum:Save the DateFriday, October 7
from 10 a.m. to noonCrowne Plaza Fort Myersat Bell ower Shops
Dr. Amanda Avila, Hope ParkinsonProgram Medical Director, will presentPD Medical reatments: Fact vs. Fiction.
Patricia Radord, Senior AssociateDirector, Advancement rom Te Michael
J. Fox Foundation or Parkinsons Research,will present an overview on the currentstate o Parkinsons research and shareexciting updates rom the Foundation.
Seating is limited, and pre-registration willbe required. Online registration will openAug. 26. Check hopeparkinson.org/eventsor more inormation.
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Local Resources for Parkinsons DiseaseContact the ollowing organizations or more details and current programming schedules.
NPF National Parkinson Foundation
PD Help Line; Patient Education Booklets;Aware In Care Kits; Ask the Doctor Forumwww.parkinson.org800-473-4636
MJ Fox Foundation
PD Research Opportunitieswww.michaeljoxoundation.org
UF Center for Movement Disorders
3450 Hull Rd., Gainesville, 32607www.movementdisorders.ufealth.org352-265-8408
Te Davis Phinney Foundation
www.davisphinneyoundation.org
PDF Parkinson Disease Foundation
www.pd.org
National Resources
Educational and Navigational SupportArea Agency on Aging or Southwest FloridaAging and Disability Resource Center15201 N. Cleveland Ave., North Fort Myers
Helpline 866-413-5337; www.aaaswfl.org
United Way-211Helps people navigate their way through the maze ohealth and social services agencies by providing the mostadequate resources or the clients situation and promotingprevention and sel-sufficiency by giving clients easy accessto services. www.unitedwaylee.org
Dubin Resource CenterDementia Saety Program, dementia caregiver educationand support groups.239-437-3007; www.alzheimersswfl.org
Chronic Disease Sel-Management WorkshopIts All About You239-424-3122
Good Wheels, Inc.Provides transportation or the ransportationDisadvantaged in Lee, Hendry and Glades counties andserves the community as the major transportation provideror Medicaid in Lee, Hendry and Glades counties.239-768-2900; 1-800-741-1570; www.goodwheels.org
Exercise Health & WellnessBonita YMCA Pedaling or Parkinsons programMarla Ramsey; 239-221-7560 x116
Lehigh Senior Citizens CenterWeekly ai Chi Balance Classes219 Plaza Drive, Lehigh Acres239-369-5355; seniorcentermgr@comcast.net
LMHS SHARE ClubSenior Health & Wellness program serving residents oSouthwest Florida ages 50 and older.239-424-3765;
SHARE-Club@LeeMemorial.org
Lee County Parks & Recreation PoolsSan Carlos, Lehigh Acres, Fort Myers and Pine Island239-533-7275
Punta Gorda PD Exercise ClassesContact Pete Gaylord at pgaylord320@gmail.com
Cape Wellness Center LMHSPD exercise and fitness center; 239-424-3225
FYZICAL FINESS
Rock Steady Boxing Gym13010 Metro Pkwy., Fort Myers; 239-561-1177
Medical ServicesLMHS PD Rehabilitation Service eamFREE Summer Parkinson Rehab Screenings:July 30 and Sept. 24. Pre-registration required.Contact Mary Jo Haughey, SLP; 239-434-4962
FYZICAL Terapy & Balance Centers239-561-1177; www.yzical.com/ort-myers
Hope at Home
Private Duty Care, Medicare Home Health, Palliative andHospice Care239-482-HOPE; www.HopeHCS.org
Mind & Brain CareDr. Mabel Lopez, Neuropsychologist6442 Commerce Park Drive #1, Fort Myers239-768-6500; www.mabc.co
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2016 Parkinson Cruise
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Caring Community
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Inaugural Walk 4 Hope:Raising Awareness for Hope Parkinson Program
O ip o the Montho decrease tremors that make eating a challenge,
try using a 2.5-pound cuff weight on your
wrist while you are eating. Cuff weights can be
purchased at retail stores for approximately $5.
Using weighted utensils may also make it easier
to reach the mouth. A variety of styles, in both
plastic and stainless steel, can be purchased
online from www.Amazon.com or
www.SammonsPreston.com starting around $12.
LLC Speech-Language Terapy
With special thanks to
7/25/2019 Hope Parkinson Program Summer Newsletter
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Hope Parkinson Program Calendar Details
* Provided in partnership with PASFI.
** Entry to Estero and North
Ft. Myers Lee County Parks and
Recreation acilities requires you present a
Membership Card that can be purchased
at the acility prior to attending your
first class. Cost is $10 or a lietime
membership.
All events require pre-registration.
Please call 239-985-7727
or email Michelle.Martin@hopehcs.org.
Te latest programming information can
be found at www.Hopeparkinson.org.
Call for detailsbefore attending your first
class. Schedules are subject to change.
C O L O R K E Y :
Support Groups: Blue
Exercise Classes: Black
Educational Events: Red
Social Events: Green
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E V E N L O C A I O N S :
BONIA SPRINGS Hope Bonita Springs Community Room: 27200 Imperial Parkway
e Terraces: 26455 S Tamiami Trail *
CAPE CORAL Cape Coral Wellness Center: 609 SE 13th Court
HOPE Cape Community Room: 2430 Diplomat Parkway E.
ESERO
Estero Recreation Center: 9200 Corkscrew Palms Blvd.**
Coconut Point LMHS Healthy Life Center 23190 Fashion Drive, Suite 105
FOR MYERS Cypress Cove Edison Room: 10500 Cypress Cove Drive
Brookdale Cypress Lake: 7460 Lake Breeze Drive
FUMC-Faith United Methodist Church: 15690 McGregor Blvd.
Hope HealthPark Community Rooms: 9470 HealthPark Circle Shell Point Kings Crown Meeting Room: 14701 Kings Crown Way
LABELLE Hope Connections: 475 East Cowboy Way
NORH FOR MYERS Recreation Center: 2000 North Recreation Park Way **
PUNA GORDA Punta Gorda Isles Civic Association Room 4: 2001 Shreve Street Led by Pete and Kelly Gaylord. Call 941-637-6418.
At the movie premiere, Hopevolunteers served rereshmentswith old-ashioned style.
Capturing Graceshows how thepower o dance can ease PDsymptoms.
Te PD Dance Clinic wasled by University o Floridagraduate student AshleyLeBlanc.
7/25/2019 Hope Parkinson Program Summer Newsletter
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MONDAY
TUESDAY
WEDNESDAY
THURSDAY
FRIDAY
Happy
FourthofJuly!
NoClasses
Exercise
Bonita-Terraces11am
N.
Ft.Myers11am
Exercise
FTM-FUMC10am
HopeHealthPk.TaiChi2:30pm
CaregiverSupportGroup
FUMC10am
Exercise
BrookdaleCypressLake10:30am
Bonita-Terraces11am
N.
Ft.
Myers11am
CaregiverSupportGroup
CapeWellnessCtr.
1pm
Exercise
HopeCapeTaiChi3pm
PDSupportGroup
ShellPointKingsCrown
10:15am
Exercise
N.
Ft.Myers11am
PDSupportGroup
HopeLaBelle1pm
Exercise
FTM-FUMC10am
HopeHealthPk.TaiChi2:30pm
Exercise
BrookdaleCypressLake10:30am
Bonita-Terraces11am
N.
Ft.
Myers11am
PDSupportGroup
BrookdaleCypressLake11:30am
CapeWellnessCtr.
2pm
Summer
IceCreamSocial
&MovieEvent
HopeCapeCom.
Rm.
1pm
RSVPby7/8
239-9
85-7
727
Exercise
HopeCapeTaiChi3pm
Exercise
Bonita-Terraces11am
N.
Ft.Myers11am
Exercise
FTM-FUMC10am
HopeHealthPk.TaiChi2:30pm
Exercise
BrookdaleCypressLake10:30am
Bonita-Terraces11am
N.
Ft.
Myers11am
LadiesPDGroup
HopeHealthPark-1pm
Pun
taGordaSupportGroups
PWP&CarePartners
Meetseparatelysamebldg.
PuntaGorda-1
0:30am
Exercise
HopeCapeTaiChi3pm
CommunityEducationEvent
FindingHopeFor
LivingWellWithPD1pm
LehighAcresLibrary
RSVPby7/20.
239-985-7727
Exercise
N.
Ft.Myers11am
PDSupportGroup
HopeLaBelle1pm
Exercise
FTM-FUMC10am
HopeHealthPk.TaiChi2:30pm
Exercise
BrookdaleCypressLake10:30am
Bonita-Terraces11am
N.
Ft.
Myers11am
4
5
6
7
8
11
12
1
3
14
15
25
26
2
7
28
29
18
19
2
0
21
22
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MONDAY
TUESDAY
WEDNESDAY
THURSDAY
FRIDAY
Exercise
EsteroRec.Ctr.
11am
HopeCapeTaiChi3pm
PDS
upportGroup
ShellPointKingsCrown
10:15am
Exercise
Bonita-Terraces11am
N.
Ft.
Myers11am
Exercise
FTM-FUMC10am
EsteroRec.Ctr.
11am
HopeHealthPk.TaiChi2:30pm
CaregiverSupportGroup
FUMC10am
Exercise
Bro
okdaleCypressLake10:30am
Bonita-Terraces11am
N.
Ft.
Myers11am
CaregiverSupportGroup
CapeWellnessCtr.
1pm
Exercise
EsteroRec.Ctr.
11am
HopeCapeTaiChi3pm
PDS
upportGroup
EsteroRec.Ctr.
12Noon
Exercise
Bonita-Terraces11am
N.
Ft.
Myers11am
PDS
upportGroup
HopeLaBelle1pm
Exercise
FTM-FUMC10am
EsteroRec.Ctr.
11am
NoTaiChitodayonly
Exercise
Bro
okdaleCypressLake10:30am
Bonita-Terraces11am
N.
Ft.
Myers11am
PDSupportGroup
Bro
okdaleCypressLake11:30am
CapeWellnessCtr.
2pm
Summer
Ic
eCreamSocial
&MovieEvent
HopeHealthPark1pm
RSVPby8/5
239-985-7727
Exercise
HopeCapeTaiChi3pm
Exercise
Bonita-Terraces11am
N.
Ft.
Myers11am
Exercise
FTM-FUMC10am
EsteroRec.Ctr.
11am
HopeHealthPk.TaiChi2:30pm
Exercise
Bro
okdaleCypressLake10:30am
Bonita-Terraces11am
N.
Ft.
Myers11am
Exercise
HopeCapeTaiChi3pm
Exercise
Bonita-Terraces11am
N.
Ft.
Myers11am
PDS
upportGroups
N.
Ft.
Myers12Noon
(Bringbrownbaglunch)
PDS
upportGroup
HopeLaBelle1pm
Exercise
FTM-FUMC10:00am
EsteroRec.Ctr.
11am
HopeHealthPk.TaiChi2:30pm
Exercise
Bro
okdaleCypressLake10:30am
Bonita-Terraces11am
N.
Ft.
Myers11am
LadiesPDG
roup
H
opeHealthPark1pm
Punta
Gorda
SupportGroups
P
WP&CarePartners
Mee
tseparatelysamebldg.
PuntaGorda10:30am
Exercise
EsteroRec.Ctr.
11am
HopeCapeTaiChi3pm
Exercise
Bonita-Terraces11am
N.
Ft.
Myers11am
Exercise
FTM-FUMC10am
EsteroRec.Ctr.
11am
HopeHealthPk.TaiChi2:30pm
REMINDER:
ONLINEREGISTRATIONFOR
FALLFORUM
OPENSFRI.8/2
6
1
2
3
4
5
8
9
1
0
11
12
22
23
2
4
25
26
29
30
3
1
15
16
1
7
18
19
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MONDAY
TUESDAY
WEDNESDAY
THURSDAY
FRIDAY
Exercise
Brookdale/Lakes10:30am
Bonita-Terraces11am
N.
Ft.
Myers11am
C
aregiverSupportGroup
CapeWellnessCtr.
1pm
LaborDay
NoClasses
Exercise
Bonita-Terraces11am
N.
Ft.
Myers11am
Exercise
FTM-FUMC10am
EsteroRec.Ctr.
11am
HopeHealthPk.TaiChi2:30pm
CaregiverSupportGroup
FUMC-10:00am
Exercise
Brookdale/Lakes10:30am
Bonita-Terraces11am
N.
Ft.
Myers11am
PDSupportGroup
Brookdale/Lakes11:30am
CapeWellness2pm
Exercise
EsteroRec.Ctr.
11am
HopeCapeTaiChi3pm
PDSupportGroup
ShellPointKingsCrown10:15am
EsteroRec.Ctr.
12Noon
Exercise
Bonita-Terraces11am
N.
Ft.
Myers11am
PDSupportGroup
HopeLaBelle1pm
Exercise
FTM-FUMC10am
EsteroRec.Ctr.
11am
HopeHealthPk.TaiChi2:30pm
Exercise
Brookdale/Lakes10:30am
Bonita-Terraces11am
N.
Ft.
Myers11am
Summer
Ic
eCreamSocial
&MovieEvent
HopeBonitaCom.
Rm.
1pm
RSVPby9/9
239-9
85-7
727
Exercise
EsteroRec.Ctr.
11am
HopeCapeTaiChi3pm
Exercise
Bonita-Terraces11am
N.
Ft.
Myers11am
Exercise
FTM-FUMC10:00am
EsteroRec.Ctr.
11am
HopeHealthPk.TaiChi2:30
Exercise
Brookdale/Lakes10:30am
Bonita-Terraces11am
N.
Ft.
Myers11am
Ladies
PDGroup
H
opeHealthPark1pm
Punta
Gorda
Support
Groups
PWP&CarePartners
Meetseparatelysamebldg.
P
untaGorda10:30am
Exercise
HopeCapeTaiChi3pm
CommunityEducationEvent
FindingHopeFor
LivingWellWithPD1pm
ESTERO-CoconutPoint
RSVPby7/20239-985-7727
Exercise
Bonita-Terraces11am
N.
Ft.
Myers11am
PDSupportGroup
N.
Ft.
Myers12Noon
(BringBrownBagLunch)
HopeLaBelle1pm
Exercise
FTM-FUMC10:00am
EsteroRec.Ctr.
11am
HopeHealthPk.TaiChi2:30pm
Exercise
N.
Ft.
Myers11am
Bonita-Terraces11am
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2
5
6
7
8
9
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14
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19
20
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Join theHope Parkinson
Program
Tere is no cost to register and becoming aparticipant is simple. Visit HopeParkinson.org/Join and follow the easy-to-understandnstructions. Registration by phone is alsovailable at 239-985-7727.
Ways to Give BackPREAD HE WORD: Share this newsletter
with friends, relatives, coworkers andneighbors.
VISI OUR RESALE SORES: Donate or shopt Hope Chest, North Fort Myers, 239-652-114 and Hope Chest at the Crossings, Bonitaprings, 239-444-1100.
VOLUNEER: Lead an exercise class or help
with office work.
DONAE: Send a check to470 HealthPark Circleort Myers, FL 33908
Or make a secure online donation atwww.hopehcs.orgSpecial Note: When donating online pleasendicate Parkinson Program in the comments
field.
ORGANIZE: Design your own event to benefitur program. Call us at39-985-7727 for details.
Home Health Care
Private Duty Nursing
MedicationManagement
Personal CareAssistance
Caregiver Support
Family Education
Palliative Care
Expert Hospice Care
BereavementCounseling
Theyre relying on you. And you m
need some help.At Hope, we understand
have many roles in your family - and that few ar
important as your role of caregiver. We can supall you do with our comforting care - coordinat
medical needs, explaining options and providin
emotional guidance for you and your loved one
Together, we can make each day the best possibl
Let Hope be there for you.
239 482 4673
Sometimes loveneeds a helping hand.
Proud Partner Agency
239-985-7727800-859-0314
HopeParkinson.orghe Hope Parkinson Program is
provided by Hope HealthCare Services,a not-or-proit, 501 (c)(3) status
it b d
Hope Hospice and Community Services, Inc.9470 HealthPark CircleFort Myers, FL 33908
PrsUS P
PAPermFt. M
Please shop at Amazon Smile, and choose
us as your charity!Amazon will make a donation to our
organization. Just select name Hope Hospiceand Community Services, Inc.