CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their...

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Transcript of CEO Sean Murray Vision: To cure mitochondrial disease and to provide support to patients and their...

CEOSean Murray

Vision:

To cure mitochondrial disease and to provide support to patients and their families

until a cure is found

Mission:

To fund research into mitochondrial disease

To support sufferers of mitochondrial disease & their families

To educate the general public & the medical profession about mitochondrial disease

research

AMDF PhD Research Scholars

Paula Minal Matt

Ben (this is not really Ben)

Hayley Nicole

Mitochondrial DiseasePatient Registry

amdf.org.au/mitoregistry

support

www.amdf.org.au

education

AMDF Ambassadors

get involved

Sunday 29 June 2014www.stayinbedday.org.au

Sunday 19 October 2014www.bloodylongwalk.com.au

14-20 September 2014

www.gmdaw.org

14-20 September 2014

www.gmdaw.org

Distribute a fact sheetCreate a YouTube videoEmail 10 peopleWrite to your local, state and federal politicianContact your local newspaperContact your local radio stationMake mitochondria shaped biscuitsMake a poster…

Point 1:1 in 200 people (over 110,000 Australians) carry genetic mutations and are at risk of developing mitochondrial disease

Previous Current

1:250

1:200

Point 2:One Australian child born each week will develop a severe or life threatening form of mitochondrial disease

Point 3:There is no cure and few, if any, meaningful treatments for mitochondrial disease. Research is vital.

Faces ofMitochondrial Disease

14-20 September 2014

www.gmdaw.org