ACTION ON PRE ECLAMPSIA- WHY ARE WE STILL NEEDED?

Marcus Green, CEO, APEC

ARE WE HERE FOR THE APEC BURTON AND DERBY STUDY DAY?

HOUSEKEEPING

HISTORY AND HEADLINES

APEC WAS SET UP IN 1992 BY ISABEL WALKER, A SUFFERER AND

PROFESSOR CHRIS REDMAN

Our vision is one of a future in which there

should be no deaths from pre eclampsia due to

sub-standard care.

UNDERSTANDING PRE-ECLAMPSIA

SOME ACHIEVEMENTS

PRECOG Guidelines (The Pre-eclampsia Community Guideline) 2004 and 2009

NICE Guidelines (2001)

Online training (2018)

Overseas growth (2017- date)

THE TEAM

KEY PEOPLE

THE LANDSCAPE

WHAT IS THE CURRENT LANDSCAPE

UK has the lowest recorded pre-eclampsia mortality rate globally

Since 2010,

• 18.8% reduction in stillbirths

• 5.8% reduction in neonatal mortality

• 8% reduction in maternal mortality

• Maternal mortality occurs in fewer than 1 in 10,000 pregnancies.

• Of the term babies who died in 2016, different care might have led to a different outcome for 71%

• Women from the poorest backgrounds and mothers from BAME groups are at higher risk of their baby dying in the womb or soon after birth

Shennan AH, Green M, Chappell LC. Maternal deaths

in the UK: pre-eclampsia deaths are avoidable. Lancet

2017; 389: 582-83.

GLOBAL PERSPECTIVE

Land Population density

Maternal mortality Perinatal mortality

WHAT APEC DOES

SOME OF WHAT WE DO

Helpline

Training materials

Publications

Midwife Study Days

Walker Redman Scholarship

Cradle VSA

Research

Working overseas

HELPLINE CALLS – COMMON THEMES

Fear for the future– previous bad experience, bereavement, don’t understand what has happened – WILL IT HAPPEN AGAIN?

Isolation – don’t know who to turn to, do not ‘get on’ with GP, don’t want to be a nuisance

Mistrust – don’t feel GP/midwife understands pre-eclampsia and potential risks

Aspirin – will it harm my baby? – very common

Debriefing – why did this happen?

What did I do wrong?

Support – I just need to talk to someone

WHAT YOU WILL LEARN ON THIS COURSE

Definitions used in hypertensive disorders of pregnancy.

The global burden on hypertensive disease

Maternal cardiovascular adaption in normal pregnancy

Pathophysiology of hypertensive disease in pregnancy

Risk factors for hypertensive disorders in pregnancy

Pre-conception care; reducing the risk factors.

Diagnosis

Complications

Eclampsia

HELLP syndrome

Monitoring

Correct measurement of blood pressure in pregnancy

Urine analysis

Management

Antenatal

Intrapartum care

Postnatal

Counselling women after a pregnancy complicated by pre-eclampsia

Care of women with chronic hypertension

Albanian

Bengali

Chinese

Croatian

Farsi

French

Greek

Guajarati

Hindi

Kurdish

Portuguese

Romanian

Somali

Spanish

Tamil

Turkish

Twi

Urdu

Vietnamese

Welsh

Action on Pre-Eclampsia

Walker, Redman

Scholarships

Recognising 25 years of supporting families, research and developing globally

RESEARCH

We back great science

We add the PPI voice

MBBRACE and NMPA

Trial Name Lead Organisation

BuMP RCT Professor Richard McManus The University of Oxford

CATCH Professor Anne Cathrine Staff University of Oslo and Division of Obstetrics and Gynaecology, Oslo

University Hospital, Norway

WATCH Professor Anne Cathrine Staff University of Oslo and Division of Obstetrics and Gynaecology, Oslo

University Hospital, Norway

Giant PANDA HTA Prof Lucy Chappell King’s College London

HAPPEE Professor Andrew Shennan and Professor

Mickias Musiyiwa

King's College London and University of Zimbabwe (UZ)

PHOENIX CIG Professor Lucy Chappell and Professor

Andrew Shennan

King's College London

PET RoR RT Asma Rosemary Townsend The Fetal Medicine Unit, Academic Department of Obstetrics and

Gynaecology, St George’s Hospital Medical School, London

iPLACENTA Kevin O’Reilly/Colin Murdoch Aston Medical School

Raya Vinogradov Newcastle upon Tyne NHS Foundation Trust

Maternal and Neonatal

Health and Care

Jane Sandall King's College London

Wellbeing of women

project grant

Mel Griffin

Pre-eclampsia research Dr James Cobley University of Highands and Islands, Inverness

Networks in Pregnancy

Project

Lisa Hinton University of Oxford

CRADLE VSA “We’re very proud of this device, it is unique for use in pregnancy. Not only can it accurately detect when a woman is in danger from high blood pressure or shock, but it also indicates, to untrained people when to act on this. I use it in my NHS clinic as it is superior to most existing devices for measuring blood pressure. - Prof Andrew Shennan OBE

GHAPEC

Approached by group in Feb 2017

Agreed to support

Launched in May on World Pre-eclampsia Day

We’ve supported

Access to CRADLE VSA

Access to Cowan, Redman, Walker book

Midwife training

Planning exchange programme in 2019

OUR GROWING VISION

We will be the go-to organisation for researchers needing patient/public involvement

We will campaign on behalf of mums, families and for babies

We will continue to widen our focus globally

We will support you to create great patient centred research

We will continue to be a source of advice and support to families

We will provide more excellent learning resources for midwives

We will not stop!

Follow us on Twitter @apec_uk and Facebook

Use our resources for research

Support our study days

Use the Cradle Device

Feedback how we can support you

Keep telling people about us

Anyone fancy running the London Marathon?

PLEASE CARRY ON SUPPORTING US!

Action on Pre-eclampsia

The Stables

80B High Street, Evesham

Worcestershire, WR11 4EU

twitter.com/APEC_UK

facebook.com/APEC.UK

01386 761848

chief.executive@apec.org.uk