Post on 21-Nov-2014
Development and First Evaluation of the new Patient Management and Documentation System MSDS 3D for Patients with Multiple SclerosisTjalf Ziemssen, Fabian Kratzsch, Marco Eulitz, Raimar Kempcke, Nina Kleiner, Heinz Reichmann MS@uniklinikum-dresden.de
Multiple Sclerosis center Dresden, Department of Neurology, University of Dresden, Germany
OBJECTIVE: To develop and evaluate a new Multiple Sclerosis patient
management software and hardware MSDS 3D for guideline-based
management and documentation of MS patients.
BACKGROUND: Multiple Sclerosis Documentation System (MSDS) has
been developed as standard MS documentation system in Germany since
2001 to generate data for the German MS registry. Up to now, there has
been no interface to patient and nurse data for multidimensional evaluation
(fatigue, depression, QoL, treatment management). As MS treatment
protocols get more and more complicated with implementation of new
drugs, MSDS 3D was developed to change the solely documentation to a
patient management system according current guidelines.
DESIGN/METHODS: In addition to the local hardware running MSDS, a
touch-screen and internet-based module (interface to patients mobile
phone) was developed for this project using ABS-VO technology to add
patients and nurses data using this interface. Special treatment and study
modules were developed with a defined visit schedule and mandatory
examinations which are documented and visualized by MSDS. Other
reports eg. from neuroradiologists, ophthalmologists are implemented
using the MSDS internet server. A touch screen terminal was developed
for collecting patients data and to provide information to the patient.
(A) Information from the patient (B) Information to the patient
RESULTS: MSDS 3DINTRODUCTION RESULTS: MS eMobile phone
PATIENTS & METHODS
CONCLUSIONS
MSDS 3D was adapted from eCRF forms used in clinical studies. For very
visit, certain modules are defined to each visit according a predefined
schedule according clinical pathways. Patients could be included in
different modules (eg. Natalizumab, clclinical studies).
The main screen includes the modules of the actual visit as well as the last
and next visit. In addition to the necessary modules, the obligatory
timeframe for visits is presented. If a visit does not take place, physiacian
and patient are reminded.
Main part of the system is the interactive patient terminal which can be
used to get information from the patient by intelligent adaptive
questionnaires. As well, information can be provided to the patient.
The MSDS 3D server can not only use the patient terminal in the MS
center, but can interact with the patient´s home computer or mobile phone.
So a first version of the MS eMobile phone was developed.
MS eMobile phone can be used to contact the patient or to be contacted by
the patient. It includes a calendear and an individualized information
platform.
In a pilot phase, MSDS 3D including the patient terminal was tested by 100
MS patients. The feedback was positive in more than 90% of the patients.
We have developed a new MS patient management system whgwhich was
positively evaluated by the MS patients in a pilot study. It is able to cope
with more complex treatment algorithms in MS patient care. To multicenter
studies arte on the way to evaluate the system in a university-based
scenario (REPABO) and a community neurology-based infrastructure (X-
Scale).
Main part of the system is the interactive patient terminal which can be
used to get information from the patient by intelligent adaptive
questionnaires. As well, information can be provided to the patient.